Questions & Answers

Hi all,

I have an MPN specialist that I have seen for 3 years and visit twice a year. Recently, my insurance changed as a result of turning 65 and the MPN specialist is not in network. Therefore, I will self pay and see her twice a year. Recently, I made an appointment with a hematologist in network for blood work and for renewing Hydroxyurea script. My question is whether to tell the hematologist that I visit an MPN specialist?

Thank you,

My blood test showed platelets 904,000
The results of a bone marrow biopsy showed that I have myelofibrosis
Genetic test results showed that I was positive for the CARL gene mutation
Yesterday the doctor concluded: MF. (The doctor explained that my platelets were high due to MF)

Hello
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I’m hearing a few times now a supplement called Natokinnese can be taken twice a day every 12 hours as a safer, nontoxic alternative to the daily baby aspirin for MPNs.

It was given to me for Chiro purposes but is doubling as an MPN body inflammation lowering supplement👏🏼.

You take 2 a day. I can def feel a great difference and just started it Wed. April 3rd.

Hoping this will help whoever reads this bc turmeric, ginger, etc. don’t do enough for MPN (and Chiro related) high inflammation.🙂

I have been diagnosed in the last 5 months with Primary Myelofibrosis. Prior to that i have had thrombocytopenia.

🌟Anyone familiar with this
Says it’s a revolutionary specialized treatment for chronic infections, cancer, blood disorders, vitality, longevity, etc.

Apparently, many ppl do this worldwide for multiple reasons.
Reports say no known reported side effects and safe for all ages.

🌟I’m quoted it’s about $8,000 total, told the stem cells last for your life and they’re from umbilical cord blood with NO DNA from healthy babies and mothers
Said they’re tested to be safe and thankfully non- Covid… read more