pain and mpns causes and management and myeloproliferative neoplasms | myMPNteam
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I Have Persistent Nausea And Retching That Happens Regularly. Is Anyone Else Experiencing This Too? Or Is This Related To Another Condition?
A myMPNteam Member asked a question đź’­

I found out I have hypothyroidism, I had a hysterectomy in November. It is not as bad as last year, but continues to happen. Was hoping someone can provide some guideance.

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A myMPNteam Member

Regarding thyroid: I've been treated for Hashimoto's thyroiditis for 40 years. 100 mcg of Synthroid has kept my thyroid level normal, ever since the correct dosage was found. Also: Does… read more

Anyone Else Experiencing Memory Issues? Not Age Related But Connected To This Cancer?
A myMPNteam Member asked a question đź’­
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A myMPNteam Member

Yes, I definitely have memory issues!! I'm afraid it's from the ET itself or the HU. I feel so self-conscious when I'm talking to someone + I forget a word or 2, or even forget what I'm talking… read more

Pain And MPNs: Causes And Management. For Medicinal Mgmt Of Pain It List NSAIDS Which Cause Bleeding But Not Acetaminophen That Doesn't
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Pain and MPNs: Causes and Management Read Article...
A myMPNteam Member

It is strange how the article is written. Under treatment for pain of MPN it states for aspirin
"Aspirin is given in small doses to help prevent the formation of blood clots in the body. Blood clots,… read more

I Have Left Shoulder And Arm Pain. Sometimes The Pain Is Worse And Then Subsides A Bit. It’s Like An Ache Or Stiffness. Is This Bone Pain?
A myMPNteam Member asked a question đź’­
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Myeloproliferative Neoplasm Symptoms That May Go Unnoticed Read Article...
A myMPNteam Member

I remembered there is an article on this website, so this is the link for this
https://www.mympnteam.com/resources/pain-and-mp...

I found a clear and simple explanation of why we experience bone… read more

Is It A Symptom Or Stress?
A myMPNteam Member asked a question đź’­

Hello all, let's starts by saying how grateful I am for this group. I enjoy knowing I can go here and ask questions with overwhelming and writing my own family. You all are my MPN family.🥰 So I am 47 and I am a teacher, and the teachers Union President and the head of the World language department and a mom of 2 and I'm getting older. So everyone understands that by itself is stressful. My question is, how do I know if what I'm experiencing is a new symptom or just life, I'm guessing I go with… read more

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A myMPNteam Member

Thank you!

Iwith You On This Bone Pain, How Do You Differentiate If It's From Past Injuries, Arthritis Or Whatever.
A myMPNteam Member asked a question đź’­

I've had many injuries throughout my life and have many aches and pains due to past injuries from playing sports, working or whatever. How the heck do I know if pain is from ET or what.

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A myMPNteam Member

Thank you for the hugs. I really needed them.

Bone Pain Vs. Regular Aches/pain
A myMPNteam Member asked a question đź’­

I have well-managed ET with minor symptoms. I have seen others talk about “bone pain” and I’m not sure exactly what that means. Is it the same as joint pain (knee/wrist/etc.)? Or is it something else - such as sharp pains in long bones like the arm (radius) or thigh (femur)? Can someone please describe it in more detail for me & explain how it was diagnosed, and what your doctor suggested for relief ? ~ Thanks!

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A myMPNteam Member

Thank you, Tta, for such great references and information. It’s very helpful! Lydia ~ thank you for your insight as well. I had a strange pain in my upper left arm/shoulder last year that would… read more

So Sleepy All The Time And Muscel Aches All Over
A myMPNteam Member asked a question đź’­
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A myMPNteam Member

Solidarity 🌷

Exhaustion is a symptom of MPNs, and so is body pain.

"Prominent symptoms include fatigue (92.7%), early satiety (61.9%), abdominal pain (45.9%), abdominal discomfort (53.2%)… read more

Has Anyone Experienced Bone/joint Pain? I Am Still Waiting On My Bone Marrow Biopsy Results But Was Diagnosed With ET + JAK2
A myMPNteam Member asked a question đź’­
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A myMPNteam Member

One of the problems good people have is "we don't want to get hooked on pain meds." But we need to realize that medication is available to treat the correct symptoms. If physical activity can help… read more

Does Anyone Get Phlebotomy As Their Only Treatment. Also Does Anyone Have Issues With Instant Recall For New Laws And Procedures, For Work?
A myMPNteam Member asked a question đź’­

I have PV JAK 2 positive. My numbers have not gotten too high. I get pins and needles itching and and I’m tired. At work I have issues with instant recall of new laws and procedures.

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A myMPNteam Member

Thank you Tta, this list of symptoms really helps.