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I have PV JAK 2 positive. My numbers have not gotten too high. I get pins and needles itching and and I’m tired. At work I have issues with instant recall of new laws and procedures.
Thank you Tta, this list of symptoms really helps.
Hello all, let's starts by saying how grateful I am for this group. I enjoy knowing I can go here and ask questions with overwhelming and writing my own family. You all are my MPN family.🥰 So I am 47 and I am a teacher, and the teachers Union President and the head of the World language department and a mom of 2 and I'm getting older. So everyone understands that by itself is stressful. My question is, how do I know if what I'm experiencing is a new symptom or just life, I'm guessing I go with… read more
I don't agree with Tatiana but won't argue about that. Best wishes to all.
🌟Anyone familiar with this
Says it’s a revolutionary specialized treatment for chronic infections, cancer, blood disorders, vitality, longevity, etc.
Apparently, many ppl do this worldwide for multiple reasons.
Reports say no known reported side effects and safe for all ages.
🌟I’m quoted it’s about $8,000 total, told the stem cells last for your life and they’re from umbilical cord blood with NO DNA from healthy babies and mothers
Said they’re tested to be safe and thankfully non- Covid… read more
Tatiana, I was only sharing my single person experience. I'll add, I was quite sick when I had Covid.
The trial for immunity measured 52 different 'proteins', antibodies related to sars covib2..And… read more
Probably 6 hours.
Is there any info about IF and 2/3 days fasting (only tea). NL doesn’t have any info about this. I have to start with med, but want to maybe postpone this.. try to create the best bloodwork possible..Is this possible via fasting! I know about the Mediterranean dieet. Pleas can you make me happy with an advise? Thanks
I use beetroot in my juices plus I really enjoy beetroot
Here is what is written in an article I am reading about beetroot-
‘Beets are high in antioxidants. Like carrots, they’re also rich
in… read more
Solidarity 🌷
Exhaustion is a symptom of MPNs, and so is body pain.
"Prominent symptoms include fatigue (92.7%), early satiety (61.9%), abdominal pain (45.9%), abdominal discomfort (53.2%)… read more
I have had peripheral neuropathy in my feet and now in my hands and forearms.
It is a important to distinguish the different types of numbness-tingling that can occur in relation to MPNs and their treatment.
MPN related paresthesia is a known phenomenon. While not… read more
Any advice greatly appreciated. I currently have high platelets, red cell count low and white cells high. With this i have severe itching all over from being warm, to the point I could rip my skin off. Red rash around the neck and chest that becomes worse when I get warm. Hema/onc sent me for Bmb as he said I have all the symptoms of jak2 mutation, Bmb came back OK, anyone else in this situation that just has to get on with it as the cause is unknown so no medication can be given to lower… read more
Hi Suzanne, thank you. The consultant said he would refer me to a dermatologist to help with the itching skin. Not sure how clued up he is with this as he said it's a waiting game to see what… read more
I've had many injuries throughout my life and have many aches and pains due to past injuries from playing sports, working or whatever. How the heck do I know if pain is from ET or what.
Thank you for the hugs. I really needed them.
I have been diagnosed with ET 4 months ago, my platelets are at 900.000, I have what I'm guessing is brain fog. Anyone every have it? Is it due to being under stress? This weekend, Easter, I forgot single things, a lot!!! I'm a little stressed. Is it just stress and my ET? Does this new symptom mean my platelets are increasing? Is this what brain fog is? Worrying a little bit if simple things I forget.
If that is an option, take it. You can get support for cognitive dysfunction and that makes life easier.
