Top 10 search results for "heart problems and mpns are they connected" in Q&A. To see all results and access other features, sign up for free.

I have PV JAK 2 positive. My numbers have not gotten too high. I get pins and needles itching and and I’m tired. At work I have issues with instant recall of new laws and procedures.

🌟Anyone familiar with this
Says it’s a revolutionary specialized treatment for chronic infections, cancer, blood disorders, vitality, longevity, etc.

Apparently, many ppl do this worldwide for multiple reasons.
Reports say no known reported side effects and safe for all ages.

🌟I’m quoted it’s about $8,000 total, told the stem cells last for your life and they’re from umbilical cord blood with NO DNA from healthy babies and mothers
Said they’re tested to be safe and thankfully non- Covid… read more

Diagnosed ET, JAK2, PLT966 WBC11.6, hematocrit 44.9. These are all trending up each lab.

I am 44 and considered low risk as i have never had a stroke but i do have symptoms including mild pain in left side, some tingling in my arms and feet on occasion, headaches, occasional blurred vision more than usual, night sweats, tinnutis, fatigue and very mild fibrosis in the bones. I wonder if my ET is becoming PV too with my numbers.

Many of us myself included have said we noticed changes in our bodies and self and symptoms long before we were actually diagnosed.

This bothers me bc I want and need to know, as do we all.

It’s wrong to go by the date we were diagnosed.

Anyone? Thoughts?🤔

I found out I have hypothyroidism, I had a hysterectomy in November. It is not as bad as last year, but continues to happen. Was hoping someone can provide some guideance.

I am hoping someone can help. I am 37 years old, and had a bone biopsy a few months ago to see if a vertebral lesion was malignant. It came back negative for a metastasis, but showed myelofibrosis. I was referred to a hem/onc who does not think it's an MPN because of my age. I just did 23 and me DNA testing, and it came back positive for the JAK2 mutation. The hem/onc now wants to do a bone marrow biopsy, but I don't think it's necessary as I have all of the diagnostic criteria for Primary… read more

Hello all, let's starts by saying how grateful I am for this group. I enjoy knowing I can go here and ask questions with overwhelming and writing my own family. You all are my MPN family.🥰 So I am 47 and I am a teacher, and the teachers Union President and the head of the World language department and a mom of 2 and I'm getting older. So everyone understands that by itself is stressful. My question is, how do I know if what I'm experiencing is a new symptom or just life, I'm guessing I go with… read more

Has anyone seen any interesting definitions of what causes MPN-related fatigue? I would like to learn more about it, not just hear experts say that it exists without saying anything about why. 😇

I'm new to the group and appreciate the welcome comments I've received. I was diagnosed with PMF two years ago at age 66 after a routine CBC indicated I was anemic. I was referred to a hematologist, had more bloodwork done and then a bone marrow biopsy, which confirmed the diagnosis. I have JAK2 and DNMT3A mutations, get Aranesp injections every 3 weeks that keep my Hgb in mid-9 range, am considered Intermediate Risk 1 and am "watchful waiting." I've done my best to remain active despite… read more