One of the problems good people have is "we don't want to get hooked on pain meds." But we need to realize that medication is available to treat the correct symptoms. If physical activity can help… read more
I have PV JAK 2 positive. My numbers have not gotten too high. I get pins and needles itching and and I’m tired. At work I have issues with instant recall of new laws and procedures.
Thank you Tta, this list of symptoms really helps.
I remembered there is an article on this website, so this is the link for this
https://www.mympnteam.com/resources/pain-and-mp...
I found a clear and simple explanation of why we experience bone… read more
Hello all, let's starts by saying how grateful I am for this group. I enjoy knowing I can go here and ask questions with overwhelming and writing my own family. You all are my MPN family.🥰 So I am 47 and I am a teacher, and the teachers Union President and the head of the World language department and a mom of 2 and I'm getting older. So everyone understands that by itself is stressful. My question is, how do I know if what I'm experiencing is a new symptom or just life, I'm guessing I go with… read more
I will always follow any information given here or elsewhere with research of my own. Many prove to be conflicting.
Thank you again
I have well-managed ET with minor symptoms. I have seen others talk about “bone pain” and I’m not sure exactly what that means. Is it the same as joint pain (knee/wrist/etc.)? Or is it something else - such as sharp pains in long bones like the arm (radius) or thigh (femur)? Can someone please describe it in more detail for me & explain how it was diagnosed, and what your doctor suggested for relief ? ~ Thanks!
Thank you, Tta, for such great references and information. It’s very helpful! Lydia ~ thank you for your insight as well. I had a strange pain in my upper left arm/shoulder last year that would… read more
I've had many injuries throughout my life and have many aches and pains due to past injuries from playing sports, working or whatever. How the heck do I know if pain is from ET or what.
Thank you for the hugs. I really needed them.
Thank you for the clarification. My Hematologist is not responding to my e-mails. I have to call her office tomorrow to follow up. I don’t understand why they can’t just respond. Usually they respond… read more
He was proactive at least
ran extra blood tests, did a blood test to check blood thickness, a chest CT scan to look for clots, a pelvic ultrasoundand to check spleen if enlarged, and a transvaginal ultrasound bc longer heavier shifting periods last 3-5 years.
Chest CT Scan negative, pelvic ultrasound no clots either. I didn’t think there were but felt better doing it bc I have medical anxiety, and anxiety about Rx, meds, even some holistic herbs, etc.
I think period issue, being 44 and also… read more
I go to MDA and they accept my insurance. I just got on Medicare, but they seem to indicate they will pay. You do need to see MPb specialist. The local oncologist/hematologist doesn’t usually have the… read more
Probably 6 hours.