Quick Links
About myMPNteam
Powered By
I read the article about Night Shift Work Increasing the Risk for Myeloproliferative Neoplasms. I worked the night shift for 18 years and developed ET. I am wondering if that was the trigger that started ET. How many of my MPN friends worked nights?
I worked nights for a couple of years
I looked at it for my daughter who has POTS & fibro but was thinking it might work for MPNs too?
As fatigue is the most frequent symptom in MPNs, managing fatigue helps with improving quality of life. An activity tracker could help, especially if you have a professional like an occupational… read more
for the last 2 years I have been working out at the gym 90 minutes for 5 days a week to get fit and now I am. after being diagnosed with PV last month, I have some concerns wheather working out for 5 days a week can be bad for me or not.
I am 42 and feel very energetic and want to be a fitness coach so I am really looking for a science based recommendation about this.
Thank you
Hi Immortalist,
I'm 35F with ET
i found out that there is no real limitation to the activities we are doing, beside the the general advices/indication (ie. no contact sports, no skuba diving, etc).
… read more
Dear Renee,
The 2016 WHO classification and diagnostic criteria for myeloproliferative neoplasms always includes a bone marrow biopsy to distinguish between ET/PV and PMF
https://www.ncbi.nlm.nih.g… read more
Thank you again
I have continuous ringinging in ear and my doc says it's nothing to do with MPN. But I think it is because of low blood flow in head and neck
What could be the possible reasons of this ringing in… read more
The official information is that there is no cure. I could read about the odd case that went into remission, but that seems to be more the exception than the rule. Several of those cases needed bone… read more
I have MF with negative Jak2. I take Jakafi. Goal is to decrease my spleen size. I will not know if working till after six months. I'm about to enter my 5th month this month (Aug)
My father had Mylodysplastic Syndrome (MDS). Is this considered a MPN?He died from leukemia in the end. He was diagnosed 10 months prior.
I and several other people on here have MDS and MPN and JAK2 mutation as well as other mutations. Leukemia is what we’ve been trying to avoid with treatment. Some have less or more of a propensity to… read more
Hello all, let's starts by saying how grateful I am for this group. I enjoy knowing I can go here and ask questions with overwhelming and writing my own family. You all are my MPN family.🥰 So I am 47 and I am a teacher, and the teachers Union President and the head of the World language department and a mom of 2 and I'm getting older. So everyone understands that by itself is stressful. My question is, how do I know if what I'm experiencing is a new symptom or just life, I'm guessing I go with… read more
I will always follow any information given here or elsewhere with research of my own. Many prove to be conflicting.
