Myeloproliferative Neoplasms Questions and Answers | myMPNteam

Connect with others who understand.

sign up Log in
Quick Links
Q&A Treatments A-Z Help Center Community guidelines Crisis Accessibility
Resources
Diagnosis & Information Managing Your Condition Treating MPN All Resources
About myMPNteam
What is myMPNteam Terms of use Privacy policy
Powered By

Questions & Answers

Get practical advice and insights from people who understand

Don't see your question? Ask one here
Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
881 questions
Are Severe Headaches A Symptom Of ET?? I Can Not Get It To Go Away 😔
A myMPNteam Member asked a question 💭
posted 3 days ago
•
View reactions
I Know Hydroxyurea Reduces Platelets, But How Does It Affect A Mutation Such As Jak617.
A myMPNteam Member asked a question 💭
posted 4 days ago
•
View reactions
A myMPNteam Member

Dear Mark,

It seems like you have familial ET, given that you mentioned your mother was also diagnosed with ET. And you seem to have two somatic mutations
I remembered about this study and maybe it… read more

posted 4 days ago (edited)
I Am Concerned About Hair Loss On Hydrea. Is This Common?
A myMPNteam Member asked a question 💭
posted 4 days ago
•
View reactions
A myMPNteam Member

That's so reassuring. Thank you for taking the time to share. I am going to be on a lower dose, I'm sure, because my platelets are barely elevated in the 450's so i'm going to hope for the best.

posted 4 days ago
Is Pneumonia Vaccine Ok With Polycythemia Vera?
A myMPNteam Member asked a question 💭
posted 4 days ago
•
Be the first to like/hug
A myMPNteam Member

Thanks for the info.Im pretty sure my Hemotoligist said the same.

posted 4 days ago
I Have Myelofibrosis. I Was Wondering If It Has Any Confection With Stress Fractures I Have Had In Both Of My Feet And Ankle.
A myMPNteam Member asked a question 💭
posted 5 days ago
•
Be the first to like/hug
Do All PV Patients Drink 64 0z Of Water Per Day? I Find It Hard To Do.
A myMPNteam Member asked a question 💭
posted 5 days ago
•
View reactions
A myMPNteam Member

I thought I would never drink that much either half of it is just for taking medication/vitamins 3 times daily. My JUG, w/ a straw, is 28oz and to take medication (4 including Hydroxyurea) in the AM… read more

posted 5 days ago
Minden Ételhez Eszem Kurkumát Azt Hallottam Jó Hatással Van. Matcha Teáról Van Tapasztalat? Csak Aszpirint Protect Szedek És E.T.
A myMPNteam Member asked a question 💭
posted 6 days ago
•
Be the first to like/hug
Hi Everyone. PV, JAK2, Waiting For 2nd Opinion, On 75mg Aspirin But No Other Meds Yet. 1st Venesection 2 Days Ago, Wiped Out - Common?
A myMPNteam Member asked a question 💭
posted 6 days ago
•
View reactions
A myMPNteam Member

The first one wiped me out. Subsequent phlebotomies were easier. I justade aure to drink a LOT of water the day before.

posted 5 days ago
Olvastam A Matcha Tea Pozitiv Hatásáról. Van Tapasztalat Erről. Én Aspirin Protectet Kapok Egyenlőre Öszönöm : Zoltan
A myMPNteam Member asked a question 💭
posted 7 days ago
•
Be the first to like/hug
I Started Besremi Yesterday, Does Anyone Else Use This?
A myMPNteam Member asked a question 💭

I have ET jak2 positive. Have been taking HU 2x daily for ovver 2 years. I developed leg ulcers in December, so now the dr started me on Besremi.

posted 7 days ago
•
Be the first to like/hug
A myMPNteam Member

Olvatam róla egy pozitiv cikket

posted 7 days ago
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in