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Does Anyone Else Have Hair Thinning Issue And Rash On Back Of Neck??
My hair is thinning and I too have some itching on the back of my neck
Why Do People Rely So Much On Technology, Sure It Has Its Advantages, But "over Reliance" On Them Cause Disinformation, Mistranslation, Etc?
Since I was diagnosed in 2021, I have been hoping for technological advances (including use of AI) to get to a cure for MPN’s.
I do think there is potential for too much online surfing and getting… read more
Does The Pancreas Have Cancer In It?
I don't think it does - it is the bone marrow
What Advice Are You Grateful To Share With Others About MPNs?
I see every day as a blessing. There have been not so good days and great days. It’s been 14 years now with minor adjustments to my meds. I am truly grateful.
Blessings…
Is Anyone On Permanent Disability Due To Their MPN And All The Horrible Side Effects Of Hydroxyurea?
I looked into it following my diagnosis in 2018 and it seems that of the MPN’s the only one that qualified was MF. Things may have changed since then:/
I Just Started Treatment With Hydrea This Week And Have Been Feeling Quite Emotional. Has Anyone Else Experienced This As A Side Effect?
Diagnosed with Essential Thrombocythemia, Fibromyalgia and Arthritis.
AnnariVanJaarsveld, I completely understand how you feel, as I went through it too when I started Hydrea treatment. At first, I felt very confused and weak, as if the good days were gone. But I want… read more
Significant Change In Eyeglasses' Prescription?
Hello everyone:
I had my annual eye exam yesterday, and my eye doctor is quite concerned since my prescription has changed significantly in a year. She is scheduling me for more tests. She knows about my PV diagnosis (diagnosed in April 2024). I am on daily HU 500 mg and low-dose aspirin, which so far are keeping my numbers in check.
I noticed my vision getting blurrier and brought this up as well. I also have cataracts, but she told me they are not bad enough yet to correct.
Has anyone… read more
Had times where couldn't see when my platelets where high also blood was thick sed rate 101 at that time when eye where playing games
What To Do With Terrible Itching? Very Uncomfortable And Most Nights It Keeps Me Up.
Thank you, I’ll give it a try!
Happy Holiday Season Peace To All Of Us
Enjoy the Holidays!
Anybody Have Loss Of Taste/smell While Taking Hydroxycarbamide?
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