My main symptom was/ still is the dizziness. My MPN specialist feels some comes with ET. Some not. He feels something else is going on. So looking into intercranial hypertension atm. I really cant help but wonder what is considered normal symptoms with this disease anymore. Its frustrating.

Yes, I never know when I am going to get them! They usually affect me first thing in the morning when I get out of bed…. and then I’m lightheaded and dizzy all day…

It’s so weird because they come out of nowhere!

Thanks for your response Deborah…I guess it is quite common then.

I don’t know but I have them too with Et Jak2