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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Aspects Of MPNs Are You Grateful For And Worried About Lately?

By A myMPNteam Member 20 answers

How Do Beverages With Caffeine Affect Your MPNs?

By A myMPNteam Member 25 answers

Is It True That High Platelets Are Not The Reason For Clotting Risk, But Mutations Are.

By A myMPNteam Member 24 answers

Will ET Ultimately Always Progress To PV.

By A myMPNteam Member 12 answers
1133 questions

Besremi And Effects On Thyroid

A myMPNteam Member asked a question 💭
Midlothian, VA

Has any one had thyroid problems since taking Besremi?

Does Hydroxycarbamide Cause Peripheral Neuropathy?

A myMPNteam Member asked a question 💭
Abbots Bromley UK

I Had A Large Eye Floater Show Up This Morning, With A Lightening Type Flash. As Of Now It's Still There..anybody Have This Kinda Issue.

A myMPNteam Member asked a question 💭
Wilkes Barre, PA
A myMPNteam Member

I’ve had them for years…silent migraines.. the aura without the headache.
Always good to check your eyes out!… for me… harmless..maybe happens a few times a year,,haven’t traced to anything.

3 days ago

Has Anyone Had Hair Loss While Taking The Hydroxyurea? How High Of A Dose Were You On And Did The Hair Loss Continue? Did It Eventually Stop

A myMPNteam Member asked a question 💭
Peoria, IL
A myMPNteam Member

I have been on HU all but one of almost 24 years, on 2000 mgm a day about 15 months, now, and have not experienced hair loss.

November 11

What Is The Difference Between Polycythemia And Polycythemia Vera

A myMPNteam Member asked a question 💭
THOMPSON FLS, MT
A myMPNteam Member

Thank you

November 10

Do People With Epilepsy Swear, During A Seizure, Completely Out Of Character With Their Normal Character?

A myMPNteam Member asked a question 💭
Northern Ireland
A myMPNteam Member

If this happens time after time at a local hospital, then the hospital will think the patient, usually quite wrong of the character of the patient, the patient is unaware of 'himself' "swearing and… read more

November 12

Do People With Epilepsy Swear, Extensively When Having A Seizure, Sometimes Completely Out Of Character With Their Normal Self?

A myMPNteam Member asked a question 💭
Northern Ireland

Iron & Iron Saturation Question Regarding PV Patients

A myMPNteam Member asked a question 💭
Lake Mary, FL

I was finally diagnosed with PV in 2016, and yes...my Hem & Hem levels continue to climb when I have my blood draws every 3 months (either by my PCP or my Onco/Hema). Sometimes my RBC's will be above normal, and sometimes just higher. The past two years my Iron and Iron Saturation levels have continued to climb far above the normal range. I have all of my blood drawn at the same location that's part of my healthcare group of specialists and hospitals. Meaning that I can track all of my… read more

Anyone Else Who Struggles With Onycholysis?

A myMPNteam Member asked a question 💭
Durban, ZA

Recently diagnosed with ET, but also suffering from Fibromyalgia and Arthritis.

Is It Normal To Have Intense Body Itching With Polycythemia Vera? I've Had Polycythemia Vera For 8 Years Without A Problem Until Now.

A myMPNteam Member asked a question 💭
Ohio City, CO
A myMPNteam Member

Hi Lauraspravka 😄

November 3
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