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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What's On Your Holiday Wish List That Could Improve Your Life With MPNs?

By A myMPNteam Member 16 answers

How Does The Cold Affect Your MPNs?

By A myMPNteam Member 32 answers

Are You Frustrated With Finding Effective Treatments For MPNs?

By A myMPNteam Member 32 answers

What Lessons From Your MPN Experience Are You Applying In 2024?

By A myMPNteam Member 15 answers
1135 questions

Does Anyone Out There With ET/Calr. Experience Lightheaded Feeling Daily?

A myMPNteam Member asked a question 💭
Plymouth Meeting, PA
A myMPNteam Member

Thanks Carol. I don’t drive either.

October 28

Does Essential Thrombocythemia Cause Vertigo

A myMPNteam Member asked a question 💭
Mocksville, NC
A myMPNteam Member

I'm not sure if it is vertigo or not, but I find I do get a slight bit of dizziness from time to time. I would be interested to know what actually causes the dizziness. A friend who actually had… read more

October 12

I Just Had Bone Marrow Biopsy (ET) After Jak2 Diagnosis And Platelets 580. I Am 66 And Healthy. Wondering About Hyperbaric Oxygen Therapy.❤️

A myMPNteam Member asked a question 💭
Arizona City, AZ

Anyone Taking Eliquis Plus Baby Aspirin? If So, Any Problems With Bleeding?

A myMPNteam Member asked a question 💭
Independence, MO
A myMPNteam Member

I hope you get good answers to your question
I take only aspirin. Some people from my long covid community take aspirin with Eliquis, as they have issues with the body not being able to regulate the… read more

October 12

What Type Of Diet Should A Person With Polycythemia Be On?

A myMPNteam Member asked a question 💭
THOMPSON FLS, MT

I was diagnosed with polycythemia last year, as of now I am on baby aspirin. I have little to no signs of the blood cancer. I want to keep it that way. I was hoping for some suggestions of a healthy diet. I rarely eat red meat. I do eat yogurt, fish, cheese, berries, fruit, nuts and lots of veggies. I love spinach and eat it every day, should I not eat spinach?
Any suggestions would be appreciated.
Thank you for your help.

Is There A Difference Between Primary Mf And Secondary Mf Like Mine Coming From Pv In All Fibrose Is Forming In The Bone Marrow

A myMPNteam Member asked a question 💭
Delft, NL

Does Anyone Have Side Effects With Hydroxy Urea

A myMPNteam Member asked a question 💭
Cream Ridge, NJ
A myMPNteam Member

I certainly agree...

October 16

Has Anyone Here Received Any Guidance And/or Used Both Omega 3 And Aspirin When They Have High Platelets?

A myMPNteam Member asked a question 💭
Toronto, ON

I have been taking Omega 3 for my cholesterol which it had a positive impact. However, I'm recently diagnosed and suspect that for my high platelets I will be told to go on baby aspirin (pending an appointment).

A myMPNteam Member

I have been on Omega 3’s for years, began a baby aspirin about 7 years ago when taken off my blood thinner. My hematologist is aware of all supplements I take and has never advised me to discontinue… read more

October 4

This One Is For The Ladies: How Does ET Affect Your Period?

A myMPNteam Member asked a question 💭
Durban, ZA

I have Essential Thrombocythemia, Arthritis and Fibromyalgia.

A myMPNteam Member

I spoke with my MPN Dr about this recently when he asked about overall symptoms. With the ratio of women to men being diagnosed with ET apparently at 2:1 and also at relatively younger ages now… read more

October 10

In 2018 I Was Diagnosed With A Jak2 Mutation - Now It Is Not There - Any Thoughts On What Happened To It?

A myMPNteam Member asked a question 💭
Celina, TX
A myMPNteam Member

They say exposure to toxins from 20 or more years ago or possibly just age. Way more prevalent to get diagnosed after 60.

October 2
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