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Do You Follow A Specific Diet To Help With MPN?
I eat alot of fruit and vegetables and drink plenty of water. Although quite fatigued most days, I make a point to set a goal of completing a one or two hour physical task everyday. It could be… read more
Does Anyone Have Suggestions For Good Supplements To Take For ET?
I have Essential Thrombocythemia, Arthritis and Fibromyalgia.
In addition to my hematologist, I see a chiropractor/homeopath/holistic health care practitioner, and wish I had found him before my blood clots and ET diagnosis in 2001. He is in his late 80’s… read more
Does Anyone With ET / JAK 2 + Take N-acetyl Cysteine?
May it be helpful to your condition!
Does Anyone Know If There's A Link Between HLA B-27 And JAK2? I've Tested Positive For Both.
I have ET, arthritis and fibromyalgia.
Thanks a lot! This is very interesting.
I Have A Jak2/ET Diagnosis From My Bloodwork Done By My Oncologist Is There Any Info To Be Gained By Bone Marrow Biopsy? BMB Advice?
Blood platelets are not real high (in the 500’s) just take low dose aspirin but blood platelets went up by 50 last lab Everything else okay.
Diagnosis in May of 2024, but had high platelets since 2019.
GP just sent me to oncologist in May of this year
Thank you for any info on Bone marrow Biopsy!
Ok cancel that😀
Is Presence Of Fibrosis In Bone Marrow Possible With Polycythemia Vera Or Is It Always Indicative Of Myelofibrosis?
Specifically, What Are The Differences Between Polycythemia Vera And Myelofibrosis?
What Iron Supplement Is Anyone Using?…effects?
ET JAK2…am on hydra 500 for a year and platelets are good 300.
Signs of iron deficiency..nails bending on blood test am at lowest in ok range..so expect my next visit to hematologist will recommend a supplement if some sort.
My hematologist specifically advised me not to take any iron supplements, this after I had transformed last year from ET to PV, tho I do take a multivitamin with iron with his knowledge and consent… read more
What Are The Differences Between PV And MF?
Is Shoulder Ache Due To PV Or Side Effect Of Hydroxyurea? Can Changing Timing Of Medicine Fr Morning To Afternoon Help?
On 500 mg 5 times per week. Shoulder ache occurs in the early hrs of morning at 1 am. daily. I take Hydroxyurea at about 9a.m. every morning 5 times a week . Also On Aspirin 100 mg 7 times a week. Is my aspirin inadequate ?
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