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Which Medication Is Better For ET High Platelet Count ? Hydrea Or Interferon? My Platelet Count Is Over 1.8 Million. I Have The Cal-R Mutati
@A myMPNteam Member to be exact pegasys is a interferon with a added peg molecule
this lets interferon get in your body at a slow paste
interferon you need normally to take 3 times a week… read more
Which Medication Is Better For ET High Platelet Count ? Hydrea Or Interferon? My Platelet Count Is Over 1.8 Million. I Have The Cal-R Mutati
It’s disheartening when people that provide healthcare don’t listen well. Too dismissive. In my area, you wonder about the pressure placed on employees to perform their job and make money for the… read more
Hi All. I Have ET, Diagnosed 2 Yrs Ago. So Far Up Until 3 Weeks Ago No Symptoms. Now I’ve Been Having Intermittent Periods Of Lightheadednes
Analytical Research Lab in Phoenix does the Hair Mineral Analysis; for a detailed nutritional analysis.
Anyone With ET Using Besremi?
I have been on it since December 2023. Had only on phlebotomy since then… just two weeks ago. But I I’m PV not ET. Doing well.
Anyone Taking Jakafi For ET Symptoms? If So, What Side Effects Have You Experienced?
Thank you for taking time to answer. Will have CBC in 2 wks so I'll see what's happening with my platelets.
How Long Did You Have Bone Pain After A Bone Marrow Biopsy? I Am At 7 Days And The Area They Went In Is Still Sore To The Touch.
If the skin looks OK and there is no redness, discharge, swelling or inflammation, and if the pain does not feel it is spread in that area, some local pain exactly at the spot where the needle entered… read more
I Have Been Diagnosed With ET. Wondering If Safe To Take A Collagen/peptide Since Reading It Affects Blood Clotting?
I take collagen daily and my MPN specialist said its fine. Collagen is in many things so we are consuming it anyways. Ask your doctor but honestly unless you are excessive like taking cups upon cups… read more
Insurer Denied COVID Shot-Contacted My Doctor-Feedback?
My health care insurer denied my next COVID vaccination because I am under 65 (I'm 63). My last one was in December 2023. With PV I feel I would be immuno-compromised and qualify. I contacted by doctor and let him know that, according to the CDC, if I am under 65 and moderately to severely compromised, I should get an additonal dose of the 23-24 vaccine:
https://www.cdc.gov/coronavirus/2019-ncov/vacci...
Has anyone else run into this? Thoughts?
Update: my doctor said I was not immuno-compromised. There wasn’t enough time to appeal before I left for vacation. I believe I got COVID as I was miserable for several days. (I didn’t have a test… read more
Who Has Found A Specialist For Primary Essential Thrombosis With Jak2 Mutation I. Seattle Wa
There is a resource here that lists MPN specialists by state.
Is Their Anyone Out There Using The Drug OJJAARA Or MOMELOTINIB? Would Like To Talk With You. Thank You, Paul
Hi Donna8. I had pretty severe shortness of breath and pretty bad water retention. I was so happy to get off of it and almost stopped on my own.
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