Ojjaara and myeloproliferative neoplasms | myMPNteam

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With Myleofibrosis, How Does A Doctor Determine Which Medicine To Choose
A myMPNteam Member asked a question đź’­
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A myMPNteam Member

I switched from Jakafi to Ojjaara when my spleen enlarged and my red blood cells were dropping. Since i switched to Ojjaara, my spleen reduced to normal and my hemaglobin is doing well. Good luck with… read more

Does Anyone Else With Mpn Have A Chronic Cough Although They Have Never Smoked? Mine Won't Go Away And After Three Years Drs Have No Answer
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A myMPNteam Member

Kim, about your chronic cough, by any chance are you taking a blood pressure medicine in the group called ace inhibitors? In about 10% of patients, ace inhibitors cause a dry cough.

Anybody Taking Ojaar- Momelotinib? Do You Have Side Effects?
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A myMPNteam Member

I have been on OJJAARA/ Momelotinib since November, Everything was going along well until January when I got A1 Flu and Pancreatitis. Since then I have had uncorralled blood pressure , high… read more

Is Anyone Taking Ojjaara? How Is It Working For You?
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A myMPNteam Member

I have been on OJJAARA since November. When they first sent it to me they also sent me Imodium I had diarrhea the first day and none since. I would say be very caucus about being around sick… read more

Anyone Taking Momelotinib Yet
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A myMPNteam Member

1 month now but I was started at 200 so my anemia has really improved. I changed to taking it at night as I was was really tired by noon after taking it in the morning. Not sure if it was the… read more

What Is Your Experience After Stopping Jakafi (myelofibrosis Patient)?
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A myMPNteam Member

I switched from Jakafi to Ojjaara and it has improved my life so much. My side effects with Jakafi-shortness of breathe, night sweets, headaches, weight gain, enlarged spleen ,anemia (even with… read more

Switched From Jakafi To Ojjaara March 5. I No Longer Have Headaches, Shortness Of Breathđź‘Ť, No More Night Sweats, Anemiađź‘Ť,spleen Smaller
A myMPNteam Member asked a question đź’­

Any have similar results

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A myMPNteam Member

No i didn’t although my dr indicated its a 50% approval rate with his personal experience

Is Anyone Know About Navitoclax Or Momelotinib & What They Do For PMF
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A myMPNteam Member

I started taking Momelotinib a month ago as a replacement for Jakafi. I have PV?MF and had issues with my blood and some side affect issues with Jakafi. Momelotinib/ OJJaara is suppose to help… read more

Why Am I So Tired All The Time.
A myMPNteam Member asked a question đź’­

Hi,63 , diagnosed with PV 10 years ago. Extreme exhaustion always. phlebs and aspirin only. Counts not too far out of range. Daily routine includes yoga and walking, nutritionsupplements. Trying to eat healthy always but no appetite.
Why so tired??

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A myMPNteam Member

Was diagnosed with Myelofibrosis several years ago and went from Jakafi to Vonjo and now Ojjarra which for me had less side effects. My main problem aside from an enlarging spleen was constant anemia… read more

PV Drug Therapy?
A myMPNteam Member asked a question đź’­

I was diagnosed with PV 9 months ago and am trying to get up to speed. Just discovered myMPNteam. I’m curious for those that have been dealing with this for longer, at what point is drug therapy recommended? My doctor said it was preferable to do phlebotymys to keep HCT below 45, 40 even better. But as I read some of the stories here I see many people on drug therapy. Appreciate any wisdom

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A myMPNteam Member

I was on Hydroxyurea and was having a lot of Phlebotomies. When switched to Jakafi I no long needed the Phlebotomies, but my blood counts tanked. I became Anemic and was on the verge of… read more