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Anyone Taking Jakafi For ET Symptoms? If So, What Side Effects Have You Experienced?
Thank you for taking time to answer. Will have CBC in 2 wks so I'll see what's happening with my platelets.
How Necessary Is It To Commence Cryotherapy If You Don't Have Any Symptoms Of ET? Platelets Are Slightly Elevated But Not Excessive.
You never have to start cytoreduction for asymptomatic ET unless you believe it is in your best interests to do so. There is a risk stratification system in place for ET. I believe your profile… read more
For ET People, Do Lower Platelets Equal Fewer Symptoms, And Higher Platelets Equal More Symptoms?
Hi Patty
My platelets have been as high as 970 and as low as 490. No symptoms high or low.
All I will say I was very stressed our when they were 970.
Best wishes
Lyn
Hi All. I Have ET, Diagnosed 2 Yrs Ago. So Far Up Until 3 Weeks Ago No Symptoms. Now I’ve Been Having Intermittent Periods Of Lightheadednes
Analytical Research Lab in Phoenix does the Hair Mineral Analysis; for a detailed nutritional analysis.
Are Severe Headaches A Symptom Of ET?? I Can Not Get It To Go Away 😔
I have terrific headaches also. Tylenol does help, but Advil helps more. My Oncologist told me not to take NSAIDS. I guess because of blood clots!
I Have ET & Have Started To Get Breathless During The Day & Previously At Night Time But Also With A Heaviness In The Middle Of My Chest.
All tests do not sure anything, as gave had cr scan, etc, therefore wondering if this is a separate symptom or from ET. I am only on aspirin as under 60 & this seems to control my symptoms of stinging sensation in fingertips & stabbing sensation..
Thank you Eugene for this information & will look into further, much appreciate 🙂
What Are Symptoms Of Median Myles Fibrosis
I Have Had Pain In Several Joints During 3 Months. Could It Be A Symptom Of MPN?
I have essential trombocytosis.
Thank you for this information.
Good Morning! I Developed A New Symptom On This Journey. Last Evening, My Whole Mouth Was In Great Pain. Every Tooth Included.
Thank you so much, Eugene and Tia. The pain has lessened a great deal, and I am grateful.
Has Anyone Experienced Bone/joint Pain? I Am Still Waiting On My Bone Marrow Biopsy Results But Was Diagnosed With ET + JAK2
One of the problems good people have is "we don't want to get hooked on pain meds." But we need to realize that medication is available to treat the correct symptoms. If physical activity can help… read more
