Anyone Taking Pegylated Interferon For An MPN And If So How Bad And How Long Did The Side Effects Last?
I have PV and am JAK2 positive. I was diagnosed two years ago and have been taking 1500mg Hydrea/per day for almost a year. It has been keeping by blood work and symptoms under control. I am under 60 and have concerns about staying on Hydrea long term. I just had a telemedicine appointment with a doctor at Johns Hopkins who also expressed concern about the long term use of this medication, particularly for me since I am also BRAC2 positive. We discussed two other options such as Jakafi or… read more
Thank you all for your feedback. While Pegasys helped my blood levels, it did not help my itching, which was intense at times. I switched to Jakafi about 8 months ago and it's been a game changer. It took a while to get the right dosage, but not only did it take away most of my itching, my labs have been the best and most consistent since I was diagnosed. I've progressed from getting biweekly bloods draws to every other month and hope to ultimately only need quarterly draws. I feel much better, plus I don't have the worry of triggering a itching attack.
I’m currently on Pegasys. HU was a nightmare drug for me I’m still trying to recover from the damage. Thankfully Pegasys helps correct that damage. It also helps or alleviates away several symptoms that just make living miserable for me. Such as drenching night sweats several times a night. Gone! Itchy throbbing feet. Gone! Bone and joint pain. Manageable far from gone but mobility increased. My ocular migraines are rare. Side effects I’ve noticed...extremely dry skin. Have to drink a ton of water with both but it seems worse on Pegasys. My mood has chgd. Little depressive. My anxiety has increased and I’ll act like an itchy bee for no reason really. I’m having break through bleeding, they say it’s my bc. Never had break through bleeding in 20 years. It didn’t start till pegasys. I swear it’s like they never wish to blame the drug for anything and we need to know the side effects
Hi, I have been on interferon injections for 2yrs .The only side effects are fatigue and flareups of itching in areas, otherwise managing quite well .
I love being on Pegasys as I have no side effects 💕
Been on pegasy injections every 2 week. Itching flares up then settled down for a time. Fatigue has stayed with me but on the whole life is good
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