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I Have Myelofibrosis- Diagnosed In Feb 2021. I Am Currently On Jakafi 15 Mg 2 X A Day. Previous 20mg One A Day.

A myMPNteam Member asked a question 💭
Granite Falls, MN

Platelets at 87,000. Enlarged spleen. I am wondering if anyone out there has Myelofibrosis and what treatment they are currently undergoing?

October 24, 2022 (edited)
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A myMPNteam Member

Read the Interferon research done at Weill Cornell and you‘ll switch to Interferon and will see amazing results.

May 20, 2023
A myMPNteam Member

I take Pacritinib for my Myleofibrosis since February 2022 My bloodwork is so good and I haven’t felt so good in years!

November 4, 2022
A myMPNteam Member

I am early stage (2yrs.). No symptoms yet and no meds. Only had several phlebotomy. My numbers are getting in control very soon. Good luck!!

June 10, 2023
A myMPNteam Member

I asked my dr at mdanderson about -pracritnib last time I was there and he wouldn’t recommend it for me. My platelets were really low going as low as 14 but for me he didn’t think it would benefit me. Wish I could try it cause sounds like it’s working great for others. He did lower my Jakafi dose which has kept my platelets around 24-30 and hgb around 10 whites are staying up though and still have procrit shot every week. Only one transfusion though in 17 wks so that a huge change. Usually every 6 to 8 weeks. Still do infusion of Vidaza every 8 wks.

April 21, 2023
A myMPNteam Member

My white, red, and hematocrit were all really high when I started Pacritinib. Now all normal.

November 18, 2022

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