I Have Myelofibrosis- Diagnosed In Feb 2021. I Am Currently On Jakafi 15 Mg 2 X A Day. Previous 20mg One A Day.
Platelets at 87,000. Enlarged spleen. I am wondering if anyone out there has Myelofibrosis and what treatment they are currently undergoing?
Read the Interferon research done at Weill Cornell and you‘ll switch to Interferon and will see amazing results.
I take Pacritinib for my Myleofibrosis since February 2022 My bloodwork is so good and I haven’t felt so good in years!
I am early stage (2yrs.). No symptoms yet and no meds. Only had several phlebotomy. My numbers are getting in control very soon. Good luck!!
I asked my dr at mdanderson about -pracritnib last time I was there and he wouldn’t recommend it for me. My platelets were really low going as low as 14 but for me he didn’t think it would benefit me. Wish I could try it cause sounds like it’s working great for others. He did lower my Jakafi dose which has kept my platelets around 24-30 and hgb around 10 whites are staying up though and still have procrit shot every week. Only one transfusion though in 17 wks so that a huge change. Usually every 6 to 8 weeks. Still do infusion of Vidaza every 8 wks.
My white, red, and hematocrit were all really high when I started Pacritinib. Now all normal.
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How Many Have Had Myelofibrosis Longer Than 2016?