Anyone Out There Getting Treated For PV With Ropeginterferon, (Besremi),
What side effects are you having and how do you mange them?
Hi I am on Besremi I have had a shot every 15 days been on it for 8 months now.
Side effects not too bad for me just tired the day after the shot sometimes it lasts 2 days feel a bit like a flu or something then it passes 😃 it used to be worse at first maybe it takes a little getting used to.
I used to take a paracetamol just before the shot but currently don’t need it.
All I do is take it easy and rest. Usually have the shot Friday evening so it doesn’t affect work.
Very happy to be on it my niece who is a genetic scientist tells me there is hope for remission with Besremi.
I was on the clinical trial here in Italy and I responded well so now that it has been approved I am back on it for PV & ET 🤗
It did raise my liver enzymes so currently on it every 21 days but I do believe it’s great and lovely not to have to have the phlebotomies and also just knowing it’s keeping all my blood values in check!
Best of luck Jutka 💖
Same Here Side Effects are Tough! Going back to Pegasys.
Thanks Brian Side effects are bad
Why Don’t We Get The Best Treatment Versus The Old Routine…
Anyone Being Treated For ET With Besremi? Is It Working?
Topic, Deferring Treatment (aside From Phlebotomies And Aspirin). Experiences From Others Who Have Chosen To ‘wait And See’.