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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Have Pulsatile Tinnitus And ET.

A myMPNteam Member asked a question πŸ’­
Waterloo ON Canada

I am told these 2 things are likely unrelated. Have other people experienced this and what was the outcome?

I am waiting for an MRI to assess the pulsatile tinnitus.

February 3, 2023
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A myMPNteam Member

I have had that on and off over the years. It started when I got diagnosed with ET 15 years ago. I’m pretty sure they are related.

February 4, 2023
A myMPNteam Member

I am aware of the condition description and that it can be a serious concern (per my doctor). In Canada, health testing and surgeries are very delayed at this point and I just have to wait. I do take aspirin daily and hydrea is keeping my platelets in check so I just keep hoping to get the call for the MRI. I asked the question in case anyone had pulsatile tinnitus and had it investigated. I suppose it's not very useful as there may be many causes for the condition - I just need to get the info that the MRI will provide. Thanks for taking the time to respond.

February 4, 2023
A myMPNteam Member

Pulsatile Tinnitus is caused by a change in your blood flow. It's name is derived from the fact that you experience the sound in time with your pulse. There are apparently several causes for the disorder, one of which could be an obstruction in a vein or artery. If you're waiting for an MRI, your doctor must not be very concerned. If it were me, I'd take some aspirin to keep your platelets from sticking together, and suggest that you may need a blood thinner like Plavix/Clopidogrel. Here's a link to an article from the Cleveland Clinic that explains it better: https://my.clevelandclinic.org/health/diseases/....

February 4, 2023
A myMPNteam Member

I have not heard this before but one never knows. Anything is possible

February 4, 2023

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