Good afternoon! I started with Jakavi in April 22 with 20mg/day. In November '22 I had to increase it to 30mg and this week the hematologist increased it to 40mg. Who is taking the Jakavi in the group? How was the evolution? How long did it take to get to the proper dosage?
Thanks to anyone who can give me feedback.
I am 75 with PMF and am on Jakafi (5mg 2x per day) in Manifest 2 trial for past six months. It’s working extremely well. I have not experienced any side effects such as weight gain and my spleen size has been reduced. My anemia symptoms have also diminished. I have MPL, SRSF2, ASXL1, and TET2 mutations - No Jak2 or CALR.
I started in 2019 on 20mgs/day - bumped to 30mgs and then 40mgs; that I am still on. It is working well managing symptoms
Can Anyone Offer Their Experience Of HU Compared To Jakafi? I Have Done Well Enough On HU But My New Hematologist Wants Me To Switch. Thanks
I Have Myelofibrosis. I Started Jakavi 20 Mg Initially It Reduced My Spleen Size And Platelets Significantly But Then It Started To Increas