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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Use A Mobility Scooter To Get Around Long Distances? We Love To Travel And I Just Don't Think I Could Do Enough Walking Anymore.

A myMPNteam Member asked a question 💭
Temple, PA
July 14, 2023
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A myMPNteam Member

Hi Wileen,

I am 41 years old and it took my partner almost 3 years and plenty of emotional outbursts before he accepted I am chronically ill and disabled. But he did accept in the end.
My work therapist told me to use as many tools as possible to save my energy and keep myself as functional and independent as possible.
Shower chair, maybe a wheelchair, any type of aid that preserves my energy. To plan strategically so that I can rest as much as possible, have easy accessible hydration and easy food for the bad days. Change things around the house so that it becomes easier to move and have plenty of spots where I can rest.
I am sorry your husband is not accepting yet that your life has changed (ableism is strong all around us), and I am happy you are fighting for accommodations.
The better the accommodations, the higher our life quality is.
There is no shame or blame in being chronically ill and disabled.
You deserve to be out and about as much as anyone else, and a mobility scooter is a good way to improve your life.

Many hugs of support,
Tatiana

August 7, 2023
A myMPNteam Member

Yes, when I shop. I get out of breath real fast.

July 22, 2023
A myMPNteam Member

I bought one that folds up and fits in the trunk

October 15, 2023
A myMPNteam Member

I always need a mobility scooter to shop.

August 15, 2023
A myMPNteam Member

Thank you Tatiana. I'm glad to find someone who understands. I'm planning on getting one next month. ❤️🛵 It's been difficult finding one that doesn't need disassembly to put in the car or travel on a plane. It's only 40 pounds. It's hard to get around sometimes and I still want to get out and do things with my family and friends. 😉 It takes a lot of planning these days to do the things we used to take for granted.

August 7, 2023

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