Has Anyone With An MPN Experienced Painful Ingling In Your Extremities, Sometimes Followed By Hot Flashes And Sweating? Thank You
I pray that they will dissipate for you. My platelets are very good all within range, so thank God for that!
I haven’t had the experience you’ve had (thank God ), I hope yours condition clears. You have a a very good doctor to diagnose this condition. I myself have ET as well .
Doctors advice, reducing your platelets. I 🥰myself get terrible sweats and hot flashes so I keep my house cool . I have fatigue a lot. Some days are good others you can forget it then I have to rest anybody have any suggestions? I do walk my dog and do what I can around the house. I have hired what they call Maids service to clean my home. I’m really glad about that as I like a neat home.
At 80, I never did have hot flashes…but for the last 4 yrs before diagnosis of ET JAK2, I went from doc to doctor to find out why my arms and legs ‘ burned inside’..like boiling blood..wakes me up, but does go away if I walk around..it wasn’t until I got to a hematologist that she explained…it is . Secondary erythromelalgia which occurs when there is an underlying blood, neurological or immunologic condition. These include: Autoimmune diseases, such as lupus and multiple sclerosis and Essential thrombocytopenia blood disorder that causes your body to produce too many platelets..I’m hoping it will dissipate as platelets drop.🤞
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I'm having 2nd thoughts as I read other answers. I have PV and recently have been taken off hydra as my body doesn't tolerate it after 8-9 years. I've had night sweats that wake me up or even when I'm awake. I get up and go to the bathroom and I always attributed the relief of the sweats to going to the bathroom. Now I wonder if just getting up and moving isn't the reason for relief! At 72, a month away from 73, night sweats shouldn't be an issue.
I have not had night sweats, but the tingling and burning in my feet and sometimes hands is painful. Moving around helps.. I am on my feet all day as a teacher. I only notice it at night.
I haven’t had tingling, but those darn Sweats, hot flashes are terrible.
Sweats are bad enough it wakes me at night when I do get them and its like someone threw a pale of water all over me.
My night gown is drenched, i have to get up, wipe down and put Johnsons Baby powder all over me to feel better.🕊💞✝️
I Had A Large Eye Floater Show Up This Morning, With A Lightening Type Flash. As Of Now It's Still There..anybody Have This Kinda Issue.
My Face Feels Hot...
Bone Pain Vs. Regular Aches/pain