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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Jakafi

A myMPNteam Member asked a question šŸ’­
Marco Island, FL

Does anyone have any vascular issues with sore that won't heal on Jakafi , Also eye issues?

October 6, 2023 (edited)
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A myMPNteam Member

Iā€™m doing wonderful on jakafi

December 12, 2023
A myMPNteam Member

I've got E.T. due to Cal-R mutation. I'm struggling with multiple side effects from Hydroxyurea but it works to lower platelets almost to normal. The hematologist focuses on what the platelet count is on each blood test. He's told me there is no better drug for me. 'll ask about Jakafi next time I see

October 10, 2023 (edited)
A myMPNteam Member

on it , but no other problems so far with my PV , seems to be working OK??????

October 6, 2023

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