Hello again Melissa. I don't know if I'm allowed to say this here, but plunging forward: I'm a secular Jew, tied to my roots but not actively practicing the religion. I have got to avoid details in the news right now as depression and stress aren't good for me. Also, it's surprising how little info we get from our doctors. I think my hematologist, although a good one, simply wants blind obedience. If I ask about something I've read on the Internet from a good source, he has said, "And how many days did YOU spend in medical school?" But I want and need to know more than how many HU to take per day. So I am happy to find this group and will check out Facebook as well. Also: the brighter side of having a slow-growing form of cancer that may shorten my life is that it's motivating me to finish some long-unfinished classical pieces at the piano. Wish I could play for everyone here. Currently I entertain once a month for an adoring audience of patients and staff at a skilled nursing facility. Makes me very happy to do this. Hope I can continue doing it. Love, Janice

My retinal doctor told me the supplements don't work. I never took any.

Thanks Janice! Same to you! We have warmer weather today and it is supposed to rain! I just got back from another 5 mile walk with my dogs. I feel so much better after I walk! I haven't made it to the store yet but will definitely get the salon patch! I learned when I moved up to Eugene that no one uses an umbrella! LOL! We walk in the rain as long as it is not a monsoon! Good for you for sleeping in! I actually slept in too. I got up at 7. I usally get up at 5:30! Hang in there and have a great day too!

Janice you are right. I had an eye problem before I had ET. I had a blister on my eye brought on by my getting hit by a truck on the sidewalk! He told me there wasn't any supplement that would really help. I asked him again with my ET and he told me the same answer. I am not having any eye problems caused by ET though.

Hello mjpm2406. I'm at an early stage with ET. Platelets started around 700; were down to about 390 at last blood test. You face more challenges. I hope all goes well. I asked my optometrist if she recommended any supplements to avoid eye problems, and she said Lutein was the only one. Ask your eye doctor about that if you wish. Mainly I want to say: I recently got an RSV vaccine shot at a local drug store, to lessen the effect of any future respiratory infection. I didn't ask my doctors beforehand as they've recommended all previous vaccine shots for me. I suggest you ask your cancer doctors if you should get that shot, if you haven't already had it. This particular shot was easy for me in terms of after-effects.
With best wishes, Janice