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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Would Like To Hear Experiences Of Anyone With ET Who Is Taking Jakafi?

A myMPNteam Member asked a question 💭
Oklahoma City, OK

One of my Hemo's wanted me to change to Jakafi. I am having a lot of issues with Hydroxyurea, but I sort of think the devil you know is better than the devil you don't know. I am pretty sure I will have to change to something else at some point. Local Drs. are really against or uninformed about Interferons.
When and why did you start Jakafi?
Side effects?
How did you get insurance or assistance to pay for it?

November 26, 2023
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View reactions
A myMPNteam Member

I was on hydroxuria for a year switched to Jakafi when my feet swelled with a rash. I have gained weight on Jakafi but do feel good the majority of the time

December 4, 2023
A myMPNteam Member

Yes , I had fatigue ended up in hospital with fever all my blood counts dropped , they stopped the hydroxy and some symptoms stopped , I feel great in jakafi like I was never sick

December 4, 2023
A myMPNteam Member

I’ve been on Jakafi since 2019 I feel fine the majority of the time, just lower energy 😴

November 28, 2023
A myMPNteam Member

Thanks for your response!

December 4, 2023
A myMPNteam Member

Did you take Hydroxyurea before Jakafi? Any side effects from Jakafi other than fatigue?

December 3, 2023

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