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Pain In My Right Lower Leg Around The Shin Area That Limits What I Can Do.
I was diagnosed with ET and positive JAK2 in August 2023. I am currently on 500mg of Hydroxyurea once a day and two 500mg pills a day on M-W-F; also on low dose aspirin. I have been having very severe pain in my right lower leg (around the shin area) for almost a year. There is no pain in my other leg. Have had every test available with no explanation. The pain is so severe it limits what I can do. Does anyone else with ET have any pain like this?
My Dr. Only requests that I go to phelbotomy for removal of blood. And yhat amazingly does make me have less pain etc.
That sounds exactly like the pain I am having around my right shin area. I have burning and bone pain in that area. I am currently in the process of changing hematologists. I am hopeful that my new physician will be able to help me with this extremely debilitating pain.
I have the same and it’s agony In my left leg - burning pain and bone pain around knee, shin, but also hip and pelvis
I have phantom pains and I find fighting through, when possible, is better than not… Movement in a pool is helpful, too
Carol,
I do get aches in my knees and lower legs. However, I do not get what you describe. What does your hematologist say?
Best wishes, Eileen
Any MF Patients On Reblozyl
My Husband Has Primary MF. Last Two Months Has Suffered Debilitating Pain, Weakness And Numbness In Right Thigh.
Posible Side Affect Of Hydroxurea?
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