Do not panic. Many people who progress live decades. Start learning about the mechanics of MPN's, the genetic side, and the organs that can all get involved. Learn as much as you can but stay away from websites like WebMD as they're too vague for our diseases/cancers. You can find a ton of studies online. There's also a few really great Facebook groups that I've found so so helpful. And you can search through the older posts too using search words that apply to you specifically. I like that because I can read older questions people have asked and all the answers they've received. Best of luck to you.