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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Many Are On Disability Because Of Their Condition?

A myMPNteam Member asked a question 💭
Plymouth, IN

I was diagnosed with Polycythemia Vera in Jan 2024.

April 10
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A myMPNteam Member

Ahhh.. okay.. thank you for responding.

April 15
A myMPNteam Member

I'm not sure what ET is.. but I agree with what you're saying here. Our world is ruled by corporate interests that brainwash the people through false and misleading commercials, just to further their plans of power and greed.
I saw something online yesterday that I thought spoke volumes.
I'm paraphrasing here..... Corporate UnAmerica have replaced Religion with the false dream of a better tomorrow through consumer spending to achieve success and have a the wonderful talking gadgets that you can have in your home now days to assist you. Talking tv's .. talking this, Alexis that. When all the while, their spying on you with this tech. WHY you ask? Because if they hear you talking about needing this or that.. then miraculously it shows up on you FB or Tweeter feed.

April 14
A myMPNteam Member

I receive disability for multiple conditions

April 16
A myMPNteam Member

ET is essential thrombocythemia, a type of myeloproliferative neoplasm, together with polycythemia vera, myelofibrosis, etc.

April 15
A myMPNteam Member

Hi!

I have hereditary ET, I am 42 years old, and I am on 100% sick-leave due to the many issues that this illness is causing me. It is a pity that we are told this illness should be not so bad, when in some cases, despite patients being young, it can be outright debilitating. It makes one feel so isolated when reading accounts of others being just fine with this condition when I can end up bedridden for weeks from a bit of effort.
https://onlinelibrary.wiley.com/doi/epdf/10.100...
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC46...

Impact of Inflammation on Myeloproliferative Neoplasm Symptom Development
Impact of Inflammation on Myeloproliferative Neoplasm Symptom Development
https://onlinelibrary.wiley.com/doi/epdf/10.1002/cnr2.1655
April 12

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