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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Seen Ads For The Visible Activity Tracker?

A myMPNteam Member asked a question 💭
Hammond, LA

I looked at it for my daughter who has POTS & fibro but was thinking it might work for MPNs too?

May 16
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A myMPNteam Member

As fatigue is the most frequent symptom in MPNs, managing fatigue helps with improving quality of life. An activity tracker could help, especially if you have a professional like an occupational therapist help you with managing effort.
This article from Cancer Connect has some good advice:
"Conserve energy: Try to be realistic about how much energy you have and what you can and can’t do. Only do the things that are most important and ask friends or family for help. It is important to recognize which activities create the most fatigue and also note the frequency, degree, and duration of fatigue so that you can report these to your doctor. If you’re having difficulty managing fatigue, you may wish to ask your nurse or doctor to help family members understand how they can help.

Maintaining normal rest and sleep patterns is important for ensuring quality rest. Plan your daily activities carefully, and schedule rest times between activities throughout your day. Try to rest when you feel the worst and do your activities when you feel better."
https://news.cancerconnect.com/myeloproliferati...

https://news.cancerconnect.com/myeloproliferative-neoplasms-mpn/myeloproliferative-neoplasm-polycythemia-vera-myelofibrosis-fatigue
May 19

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