Connect with others who understand.

Sign up Log in
Resources
About myMPNteam
Powered By
Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Been Diagnosed With Splenomegaly At Diagnosis But Later On Diagnosed With Hepatosplenomegaly?

A myMPNteam Member asked a question 💭
Keystone Heights, FL
May 28
View reactions
A myMPNteam Member

Hey WR!! As far as I know, the Jak meds work on shrinking the spleen/and or liver when it’s related to (caused by) an MPN. 🤷‍♀️

May 31
A myMPNteam Member

That’s great news, Deborah!
I am lined up to switch to OJJAARA next month😊

June 14
A myMPNteam Member

I had both hepato and Splenomegaly last year but they have both been reduced since taking Ojjaara

June 4
A myMPNteam Member

I had slight splenomegaly upon diagnosis, but that resolved once I was on hydroxyurea. A follow up CT of the Abdomen to check on spleen and liver showed slight hepatomegaly. Basically no symptoms, however. Dx with MF in 2021.

May 29
A myMPNteam Member

Thanks Nick but late stage fibrotic grade 4 PMF patients are not a good candidate for that line of treatment. At times, Pre fibrotic Myelofibrosis patients will respond but it is all according to each individual diagnosis.
Kind regards.

May 28

Related content

View All

Effects On The Body For Delayed Diagnoses For MPNs/ET

A myMPNteam Member asked a question 💭
Stockton, KS

Does Anyone Here Has Grade 2 Myelofibrosis???

A myMPNteam Member asked a question 💭
Delhi, CA

Anyone Diagnosed With ET That Later Mutated To PV?

A myMPNteam Member asked a question 💭
Port Jefferson Station, NY
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in