I just recently switched from Jakafi to Ojjaaro. It worked really well for me for almost 3.5 years.
Adding more specifically to my prior post, if Jakafi stops working for you, there are other JAK inhibitors to try. Also, you seem relatively young and may be a good candidate for a transplant. If Jakafi is currently helping you, that’s great - probably too early to worry right now.
Glad you’re responding well!! I did so well on Jakafi for 3 years and my spleen reduced by almost 50%🙏🏼
I had water retention and weight gain issues with Jjakafi. Pretty common and same issues with Molmolitnib which makes me think it was repurposed from Jakafi.
Hi Anyone Else Gaining Weight On Jakavi?? (And Not Eating More Than They Use To)
What Expirience Do You Have With Luspatercept For Anemia In Myelofibrosis Which Is Transfusion Addict
I Have Secondary Myelofibrosis And On Jakavi. My White Cells Are Low Not My Hemoglobin Or Platelets . Is Anyone Else Experiencing This?
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