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Anyone Taking Jakafi For ET Symptoms? If So, What Side Effects Have You Experienced?

A myMPNteam Member asked a question 💭
Independence, MO
July 20
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A myMPNteam Member

Thank you for taking time to answer. Will have CBC in 2 wks so I'll see what's happening with my platelets.

August 17
A myMPNteam Member

I've been taking Jakafi for two years with no side effects other than a little weight gain. I take it for PV and it keeps all my blood counts under control (10mg 2x/day). Plus it stopped my itching which no other drug has done. I've taken hydroxyurea and interferon.

August 17
A myMPNteam Member

I’ve been taking Jakafi for about 2 years now with no noticeable side effects. My bone marrow was suddenly out of control and my oncologist switched me from long-term Hydrea to Jakafi with almost immediate results. Symptoms like shooting bone pain, head feeling weird etc. pretty much subsided. I still have good days and bad days and jyhad a bout with hip/back pain for 3 weeks. Better now. Hoping to prevent transition to Leukemia.

August 17
A myMPNteam Member

Thank you. I, too, haven't had any adverse side effects. I've been taking it about 5 wks. No ocular migraines so far

August 17

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