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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Are Your Top Tips For Dealing With MPNs In The Heat?

A myMPNteam Member asked a question 💭
posted July 25
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A myMPNteam Member

Drinking plenty of water. Neck fan. Linen/cotton clothes.

posted July 25
A myMPNteam Member

I opted to not take HU right off the bat of being diagnosed “high risk” b/c of age. I wanted to give the low dose aspirin and phlebs a try first. That was 7 months ago and I’m doing okay. There are so many ways to keep blood flowing more naturally, and I’ve very glad I have not taken it.

posted July 28
A myMPNteam Member

As Anna and Carol have said, drinking plenty of fluids (good old water is best) - carry an insulated container with it if you can’t stand room temp water. Next most important is to wear sunscreen and keep your head covered, and upper extremities also — otherwise you risk getting skin cancer which is prevalent in MPN patients.

posted July 25 (edited)
A myMPNteam Member

Hi I cannot go to the beach as often as I use to,and when I do I’m under an umbrella. Probably better off 😘

posted August 6
A myMPNteam Member

I took it for 5 days and got mouth sores, headache, extreme fatigue, stinging hands and feet, hair loss - basically could not function, Also I was worried that it says can lead to pancreatic cancer which I’ve lost a sister and 2 cousins to.

posted July 28

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