Hi I cannot go to the beach as often as I use to,and when I do I’m under an umbrella. Probably better off 😘

I opted to not take HU right off the bat of being diagnosed “high risk” b/c of age. I wanted to give the low dose aspirin and phlebs a try first. That was 7 months ago and I’m doing okay. There are so many ways to keep blood flowing more naturally, and I’ve very glad I have not taken it.

As Anna and Carol have said, drinking plenty of fluids (good old water is best) - carry an insulated container with it if you can’t stand room temp water. Next most important is to wear sunscreen and keep your head covered, and upper extremities also — otherwise you risk getting skin cancer which is prevalent in MPN patients.

I took it for 5 days and got mouth sores, headache, extreme fatigue, stinging hands and feet, hair loss - basically could not function, Also I was worried that it says can lead to pancreatic cancer which I’ve lost a sister and 2 cousins to.

Plenty of fluids … and keep up gentle exercise! I find it helps me tolerate the heat better than if I become inactive. I also try to escape to the UK during July and August