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Diagnosed With ET Taking 1000 Mg Four Times A Week And 1500 Mg Three Times A Week. Is There Another Solution For Treatment.

A myMPNteam Member asked a question 💭
Sebastopol, CA
August 10
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A myMPNteam Member

Oh sorry, hydroxyurea

August 13
A myMPNteam Member

Taking 1000 Mg of what?

August 13
A myMPNteam Member

I have PV. I have been taking 500 mg hydroxyurea twice a day and a low-dose aspirin 1x/day for the last three months. It appears to be working in the sense most of my concerning counts are down. I am experiencing fatigue and dizziness. Hopefully others will weigh in.

August 14 (edited)
A myMPNteam Member

I have MDS/MPN-RS-T. On the MPN component I have ET and PV. I was diagnosed in early 2018. I’m on three 500mg Hydroxyurea on Mondays, Wednesday and Friday and two 500 mg Hydroxyurea tablets the other 4 weekdays. I also take a daily 81mg aspirin plus two 2.5 mg Eloquis tablets for clotting because my red blood cells are way too large. I also suffer from fatigue but a 30-60 minute nap mid-day fixes that problem. I don’t have the dizziness you’re experiencing. On the MDS side I have a significant number of immature white blood cells.

August 14
A myMPNteam Member

May you have the best possible care for him and his complete remission.

August 22

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