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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Which MPN Symptom Surprised You The Most?

A myMPNteam Member asked a question 💭
San Francisco, CA
August 22
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A myMPNteam Member

I’m having hair loss….have to clean all the hair out of my brush every 2 days! Anyone else? I’m hoping it’s just some stress related hair loss (since I found out I had PV just over a month ago) and not from the meds.

August 29
A myMPNteam Member

For me it has been the ever increasing number of new specialists and Drs to care for the new symptoms that keep developing.

August 22
A myMPNteam Member

For the Hydrea hair loss I recommend Nixon treatment shampoo, conditioner and scalp treatment. Works a treat for making what’s left of your hair look fuller and shiny. Promotes growth!

September 24
A myMPNteam Member

Tinnitus

August 22
A myMPNteam Member

I have MF. And have hair breakage from the jakafi . I haven’t had to shave my legs or under arms for over 4 years

October 7

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