I have been living with an MPN 23+ years, and many of us continue to work, travel and live our lives while managing our illness.

Deep breaths, one foot ahead of the other, and all the best to you,

Ashish,
I am in a similar situation having been diagnosed ~8 weeks ago. Unsure of what symptoms are due to ET and what is not. Time moves on and things have settled down a little for me. I hope they will for you as well. I still don't know about the future but am trying to do my best to live in the present. You are not alone.
Peace be with you

Hello Tatiana,

Thanks for sharing the links.Though I never looked into medical journals earlier,I feel it would be helpful to be knowledgeable of the symptoms.But also to be mindful of the individual symptoms which might not be specified in the research papers.

Thanks
Ashish

I have learned to take each day as it comes and be grateful. I do what I can to be healthy and follow my doctors suggestions and then I live my life. No one knows about tomorrow - even the healthiest person - so I try not to waste today with worry.

Dear Ashish,

Regarding inflammation and symptoms in MPNs, this study is a good read:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC46...

Regarding risk of infections in MPNs, I use this study as reference:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC77...

And if fatigue is part of your daily experience, this study is good for catharsis if you have to keep fatigue for yourself, when those around are not easy to talk to:
https://onlinelibrary.wiley.com/doi/10.1002/cnr...

I am using these studies also when I need to advocate for myself in health care.

Take care,
Tatiana

Impact of Inflammation on Myeloproliferative Neoplasm Symptom Development

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4619953/

Risk of infections in patients with myeloproliferative neoplasms – a population-based cohort study of 8 363 patients

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7738400/