I wrote a long winded reply and lost it!
Let me try again.
I am in Germany and traveling at the moment.
Can you send. me your telephone number as I could call you on Saturday afternoon your time and give you some support. My email address is (Email address can only be seen by the question and answer creators) .
I am one of three friends all diagnosed with MPN's: Thomas has PV, Siggy has Myelofibrosis and I have ET. We all have the JAK2 Mutation.
My two friends are on aspirin and Interferon and I am only on aspirin as of now.
Please let me assure you that our Blood Cancer is not like cancer patients with a Primary Cancer that has now spread and in their blood. That is a death sentence and we can be very grateful that is not the case for us.
I think once you have more information you will be able to get through the day without even thinking about your ET or PV or whatever.
Knowledge is power. I am so very grateful for the support of my friends at
Essential Thrombocythemia Support Group UK.
I can not sing their praises enough! There were days in the beginning that I just cried all day. The people in that group have a wealth of experience and information and it is one big group so everyone chimes in and gives their information and experience.
Please have a look and join and get the extra help you need.
I am here for you and as a fellow Canadian I can say that as good as our medical system is it was very hard to get information on MPN's as it is not very common and I called the Leukaemia Society and they really could not give me much information either.
If you feel up to a call, please let me know. xo

I was recently diagnosed. My primary care doctor consulted with her pathologist friend who said it does matter who does the BMB. I went to MD Anderson where they have people doing this all day long and that’s all they do. I would try to find some place like this to have it done. Please take care of yourself. I practice wisdom healing gigong and it has been an enormous benefit. It’s all online and you can join practice/ support groups. It’s the best thing I’ve done for myself and my healing. ChiCenter.com

Stay calm!
I have met with two different hematologists and they were both very relaxed about things. Don't stress yourself out. You mentioned in the past that your platelets are around 700K and you are not taking anything. Did they suggest that you start taking aspirin as that is very important. There is no way you can go forward without taking the aspirin.
If you are in relatively good health otherwise you can live with ET for a very long, long time. There are patients on the ET UK Facebook page that have been living with ET for over 30 years and they are managing well.
I know if is not easy to live with this illness as the symptoms are wacky but please don't stress more about it.
Most important is what are they suggesting regarding treatment and where are your platelets as of now?
You will be ok!!!!! xo

Thanks Teresa! This is tremendously appreciated. The hematologist speculated that it may be ET but possibly PV because although the other blood levels were okay they were borderline. Went into how things can progress into something really aggressive which I interpret to mean really fast. I have been undiagnosed since 2015 when there were the first signs of platelets above normal. It may have been as early as 2013 as I stopped going to the doctor for a couple of years and didn't get any bloodwork. At this time they are suggesting I undergo a BMB and yes aspirin as well. I would prefer a BMB with someone experienced and when I asked about the level of experience he stated the hospital did many of them. But then he also went on to say he would be doing it and according to the bio he is new.