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Hi Everyone. I Have Recently Been Diagnosed With PV Back In May 24. This Is After My ET Which Was Diagnosed In 1997 Transposed Into PV.
I have been taking Peg Interferon for the past 4 years. However there is a WWide shortage of this drug. I have been asked to consider Ruxanitlib as an alternative. However I would like to know if others have had any adverse effects of this drug as my MPN consultant advised it can lead to being more prone to skin cancer especially but also other types of cancers. Also it may make me prone to weight gain and as I am pre diabetic I have been trying to lose weight and have reached a loss of 2 stone… read more
Yes I put on 15 pounds in the last 4 years, my appetite is the same, it’s a side effect of Jakafi
Thanks Donna- did you put weight on- if so how much? Also did your appetite increase ?
Hi that’s what I take Jakafi 20mg 2x a day I have PV I did gain weight and now on cholesterol medication, but my blood is stable sooooo 🥰
Has Everyone Who's Been Diagnose With An MPN Had A Bone Marrow Biopsy Done?
Does Anyone Have Ringing In Their Ears Intermittently With PV?
For Anyone That Started With PV And Transitioned To MF, How Quickly Did That Transition Take Place?
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