Connect with others who understand.

Sign up Log in
Resources
About myMPNteam
Powered By
Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I'm ET CALR Type I - Dg Concluded With A BMB Sept 2023. My Platets Start Rising Sept 2021, After 3 Shots Covid Vaccine. What's Your Opinion?

A myMPNteam Member asked a question 💭
Sines
November 3
•
View reactions
A myMPNteam Member

Hi Veronica. Yes, I think nobody, for now, can correlate one thing to another. But it's a fact, not only for us; I read a lot of stories like ours

November 6
A myMPNteam Member

I was born with the JAK2 mutation, so not all of these diseases at acquired.

November 5
A myMPNteam Member

I am not spreading misinformation as you call it. I have my opinion and you have yours. I have shared MY experience and just because you don't agree with that does NOT give you any right to try to discredit MY RESEARCH. You can easily skip past my comments and keep it moving. So your opinion on the vaccine is the RIGHT ONE? Maybe for you but not everyone agrees. You're the one who could use some therapy to help you understand you don't have to like another's opinion. I am past the shock of my diagnosis thank you. I don't need to educate myself to speak my experience. You're spreading HATE by acting like no one can speak about what they have experienced because it differs from YOUR OPINION. I know about the vaccine thank you. I've worked over 20 years in a hospital working with patients everyday. You are not speaking to an uneducated person and I would appreciate if you didn't respond to MY comments any longer. Thank you!

November 7
A myMPNteam Member

There is not such scientific research as you claim and you are spreading antivaccine conspiracies here.

There is not a single peer reviewed scientific study in a reputable scientific journal that confirms the enormity that vaccines that prevent infections in any way form or shape change our DNA. They do nothing to your DNA. They just help your body, the immune system to be more precise, to make some antibodies to some pathogen, that has nothing to do with your DNA.

And reading some website, a blog, or some dubious antivaccine publication is not reading scientific studies.

You are spreading misinformation and antivaccine conspiracies.
I understand you are upset because you have an MPN, but what good do you think it does to spread antivaccine sentiments here? The vaccine did not cause your illness. The only thing you will achieve is to make people anxious and avoid getting a vaccine that could reduce their chances of severe illness if infected with SARS-COV2. People with MPNs are at higher risk of morbidity and mortality if infected with SARS-COV2. The vaccine reduces that risk.

Kindly talk to a therapist about your difficulties, this diagnosis is heavy, it can be very difficult to come to terms with it, but do not spread antivaccine conspiracy here. Your misinformation might end up harming someone.

November 7
A myMPNteam Member

Also, if it took on average 8 years from when the people who were exposed to a lot of radiation at Hiroshima and Nagasaki acquired the mutation that can cause CML to the development of CML symptoms, an illness very similar to essential thrombocythemia, and radiation is the ultimate carcinogen there is, how could a meager vaccine cause your ET in a couple of years? And wouldn't the world be so full of ET, that it would stop being a rare illness? My hematologist does not have more patients these days, if anything, due to the fact that Covid-19 can be severe in MPN patients and patients died due to Covid-19, the illness, especially before vaccines appeared, they have fewer patients these days.

"Estimates from cancer incidences in people who survived the Hiroshima or Nagasaki atomic bombings who developed chronic myeloid leukaemia have suggested a mean latency time of only eight years between BCR–ABL1 induction and clinical presentation."

https://www.nature.com/articles/s41586-021-04312-6

November 7

Related content

View All

Has Everyone Who's Been Diagnose With An MPN Had A Bone Marrow Biopsy Done?

A myMPNteam Member asked a question 💭
Boring, OR

Are Others With Well-managed ET Considering Getting A Covid Booster Shot This Fall?

A myMPNteam Member asked a question 💭
Pewaukee, WI

When Did You Start Taking Drugs To Decrease Platelets?

A myMPNteam Member asked a question 💭
Cairo, GA
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in