Please do. It’s a puzzle to me, but one of the things I have learned here is how different all our illnesses are, even if our diagnosis are the same, and how differently they may be effectively treated.

We may all be in the same storm, but we are not in the same boat.

I have to say, these reports of platelet levels well over one and two million are mind boggling to me.

I would like to know the medical justification for allowing levels to get this high, as I’m sure there must be one.

My platelets were in the 800,000 in 2001 when I had a shower of clots in both lungs, in the 400,000’s or so 7 years ago when I had a small hemorrhagic stroke, tho with the latter I was still on blood thinners.

Off those, I still take a daily low dose aspirin, out of respect for a genetic predisposition to clotting.

Seriously, I would like to know and understand why extremely high platelets are not an emergency.

Mary148, Might I suggest that you find a MPN specialist? MPN is a rare bird with several variants that are just now being researched. I have both a hem/oncologist and a specialist that work together. I see specialist every 4 months and hem/oncologist weekly for bloodwork and monthly for consult. I'm still learning about how my diet and how stress affects my platelet counts.

Mine reached the 1.8 million mark once. I had been started on anagrelide after ten years on Hydrea. My body responded very quickly and an inexperienced, unknowlegdable nurse practitioner instructed me to reduce my dose. I never see the two nurse practitioners at my local hemo office anymore. My megakarocytes celebrated, increasing from around 600,000 to 1.8 m in two weeks.

I’ve had ET for 18 years. About half the time having quite frequent blood draws.

My platelets have crazy swings. I recently had a TIA when my platelets reached 2.3M. They generally hover between 500 - 1M, but had stopped taking aspirin per Dr. orders before an endoscopy. I now keep a very close watch on them and have blood tests weekly. Bob's information about leafy greens is new to me but I am thankful to know that!