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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Symptom Do You Have That You Didn't Expect?

A myMPNteam Member asked a question ๐Ÿ’ญ
San Francisco, CA
May 26, 2022
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A myMPNteam Member

My oncologist says the itching isnโ€™t part of ET! I wish he had ET, then give me his feedback!!๐Ÿ˜†

May 18, 2023
A myMPNteam Member

Gosh Jim, same here with all those symptoms. I have to say the double vision and blurry vision is the worst.

May 17, 2023
A myMPNteam Member

There are a number of things I did not expect. Double and blurry vision, memory loss, understanding basic instructions, and chronic, chronic fatigue, and dizziness. I walk like a drunken sailor. On the other hand, I can re-read favorite books, and itโ€™s like reading them for the first time again ๐Ÿ˜

May 17, 2023
A myMPNteam Member

Read the research done at Weill Cornell and we all should stop poison like hydroxyurea and go on Interferon.

February 25, 2023
A myMPNteam Member

I will say bone pain and visual disturbances

May 19, 2023

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