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Medication For Myleofibrosis

A myMPNteam Member asked a question ๐Ÿ’ญ
Pittsburgh, PA

Is anyone on Pacritinib also known as Vonjo? For Myleofibrosis?๐Ÿ˜Š

November 4, 2022
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A myMPNteam Member

My new Dr is a specialist too and she
Wants me to take Besremi. Itโ€™s an injection and
Very expensive.!! Waiting to see if
I can get
More financial hep. Donโ€™t know what
To do
Otherwise

June 10, 2023
A myMPNteam Member

JennKaz - today is June 10, 2023, are you still on Pacritinib? How are you doing? I want to suggest it to my doctor. I am in SA, TX

June 10, 2023
A myMPNteam Member

Yes I am on Pacritinib also known as Vonjo for Myleofibrosis. Iโ€™ve been on it since February and Iโ€™m doing so well. Most of my blood counts are now normal and my spleen is less than half its size! I was on Jakafi for 3 months and it was not good for me it actually advanced my PV to Myleofibrosis. My Doctor is a specialist for Myleofibrosis and is located at the Hillman Cancer Center in Pittsburgh,PA. He is a great doctor.

November 8, 2022 (edited)
A myMPNteam Member

Is that what you taking jennine?

November 5, 2022

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