Wondering If Anyone On Pegasys Or Jakafi And Once Your Platlits Are In Normal Range Did You Go Off The Meds?
Yes, a friend I have has been off Interferon for 8 years and doing great.
I take Jakafi 20 mg 2 x a day. I was told PV was chronic so it doesn’t go away
I have MF. My pallettes have gone down drastically, but my spleen is still big. My Dr. Told me three more months and after he has a new scan he will decide if i should stop the Jakafi . Anybody else out there with normal pallettes and large spleen. How long was your Jakafi treatment.
I’m so excited my platelet count has gone down drastically with Pegasys, I don’t think I would stop! I want to be healthy and possibly go into remission 💕
My platelets went under 300 right after I started Jakafi. But, my shortness of breath and anemia has mandated that i stay on meds. Has anyone taken Fedratib or momelotinib instead of jakafi? Side effects?
Anyone Taking Pegylated Interferon For An MPN And If So How Bad And How Long Did The Side Effects Last?
Is Anyone Currently On The Medication Combo Of Interferon (Pegasys) And Ruxolitinib (Jakafi)?
Pros And Cons Of Doing The IV Thing That Removes Platelets. How Does This Work? How Often? How Long Does It Take Each Time? Does It Hurt?