Like Janice, I have ET with a CALR mutation. I have had night (and day) sweats for quite a while. I stopped taking hydroxyurea over a year ago. However, the sweats continue for me. At least in my case, it seems to be a disease symptom and not a treatment side effect. Good luck!

And then there’s me, with ET since 2001 and now a PV diagnosis the past couple of months, also on HU and who doesn’t have night sweats but also sweats with any exertion for decades.

Depending on your age, the night sweats could be menopausal, and I had those, too.

The profuse sweating any time of the day is uncomfortable and annoying, not necessarily an indicator of progression, IMHO.

We are not curable, but are manageable for very long periods, and I try to focus on taking the best care of myself but not worrying too much about what may come.

I have Cal-R related E.T. I get more night sweats as Hydroxy is increased. Will add that now to my list of side effects I don't like. A non-medical treatment that helps me is wetting a face cloth with cold water, ringing it out well, and sleeping with it spread across my forehead. I think this also reduces nightmares. I wake up feeling more rested.

I believe, with ET as I have, night sweats are very common and uncomfortable. I can’t even have a 2nd cup of coffee or I’ll break out into sweats! When I work in the garden and exert myself, I look like I drenched myself with the water hose! 💕

Mmm, you are so right. I too find I get my best information through this and other support groups. My doctors tend to play down most of my worries, perhaps in an attempt to ease my concerns, although straight forward information often is the best remedy. So thank you all, you're the best.