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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

With Myleofibrosis, How Does A Doctor Determine Which Medicine To Choose

A myMPNteam Member asked a question 💭
Clinton, CT
March 11, 2024
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A myMPNteam Member

My doctor, a hematologist relies mainly on blood tests. She had me on Jakafi at first and I was needing a blood transfusion about once a month. She changed me to Inribic early in 2023 and I haven't need a transfusion since then. I have also had two bone morrow biopsies.

March 11, 2024
A myMPNteam Member

My husband is on Jakafi since July. He was dx with PMF in May. He presented with enlarged spleen and severe fatigue. Jakafi is the go to drug for these common symptoms. spleen improved immediately but they reduced doseage because he felt so bad. His spleen is still reduced at 10mg, he still battles some fatigue but not near as bad as when first diagnosed. God Bless you on your journey!

March 12, 2024
A myMPNteam Member

I switched from Jakafi to Ojjaara when my spleen enlarged and my red blood cells were dropping. Since i switched to Ojjaara, my spleen reduced to normal and my hemaglobin is doing well. Good luck with Ojjaara I am very pleased with the changes

April 23, 2024

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