Found out in 2022, but hadn't been feeling well for awhile. Just thought it was anemia....

Hello you would’ve be able to tell by your blood test results, that’s how mine was found out, I had no symptoms. I have PV and iam Jak2+, taking Jakafi, it keeps my blood stable 😄

I hope this is helpful. I am 72 and have been treating ET (CalR mutation) since 2020. Treatment began when my internist noticed a high platelet count on the CBC from my annual physical. I recently saw an older CBC, from 2019, that also showed high platelet count, but that wasn't noticed at the time. Since December of 2023 I have been seeing a hematologist, who is an MPN specialist. He tells me not to worry if platelets are in 400's or 500's but we just added more Anagrelide to go back into 400's. Apparently It's not set in stone what platelet number increases the risk of blood clot. Here in Los Angeles, two medical centers have used different ranges when I used their doctors. I think this website uses 450 as the top of normal range. Please be aware that reactions to meds vary and should a bad side effect occur, there likely is an alternative. Best wishes to all.

My GP wasn’t concerned, but my Rheumatologist discovered that my platelets had shot up real fast. He was the one concerned and referred me to an oncologist. Thus my journey began. I’ve never had high platelets. This seems to have happened after COVID19 vaccinations. 🤷‍♀️

My current Oncologist has not one concern for my high platelets...