Diagnosed with myelofibrosis in 1982. No medical intervention needed until March of 2020. Began with JAKAFI 5 and went to JAKAFI 10 some time later. Was in a 6 month blind trial in spring 2022 which was not productive. Was put on VONJO for a short while after that. Did not like the side effects at all Back on JAKAFI 10 until mid February 2024 at which time I began taking OJJARA.
So far, other than controllable intermittent diarrhea, it has worked out really well. My white count is holding better and so is my hemoglobin. I also was getting PROCRIT shots throughout 2023 to try to help me sustain an acceptable hemoglobin count. It did not help and cumulatively was causing unwanted side effects. I am one of those patients that does all I can to control illness with natural or homeopathic means. Please let me know if I can help with info

Took Jakafi for 2 years until complications forced me to stop last year, at which time my Stanford doc insisted that I wait for Ojjaara to become available. Now, after feeling significantly better for 6 months on Ojjaara, I’m dealing with a possible side effect (UTIs) but still not sure if caused by the drug: TBD !

Hey Mary...
Is it your primary treatment or u did take other drug before it?
How z it workig

Yes, been taking Ojjaara since December. What do you need to know?

Hi Donna8. I had pretty severe shortness of breath and pretty bad water retention. I was so happy to get off of it and almost stopped on my own.