Is Their Anyone Out There Using The Drug OJJAARA Or MOMELOTINIB? Would Like To Talk With You. Thank You, Paul
Diagnosed with myelofibrosis in 1982. No medical intervention needed until March of 2020. Began with JAKAFI 5 and went to JAKAFI 10 some time later. Was in a 6 month blind trial in spring 2022 which was not productive. Was put on VONJO for a short while after that. Did not like the side effects at all Back on JAKAFI 10 until mid February 2024 at which time I began taking OJJARA.
So far, other than controllable intermittent diarrhea, it has worked out really well. My white count is holding better and so is my hemoglobin. I also was getting PROCRIT shots throughout 2023 to try to help me sustain an acceptable hemoglobin count. It did not help and cumulatively was causing unwanted side effects. I am one of those patients that does all I can to control illness with natural or homeopathic means. Please let me know if I can help with info
Took Jakafi for 2 years until complications forced me to stop last year, at which time my Stanford doc insisted that I wait for Ojjaara to become available. Now, after feeling significantly better for 6 months on Ojjaara, Iām dealing with a possible side effect (UTIs) but still not sure if caused by the drug: TBD !
Hey Mary...
Is it your primary treatment or u did take other drug before it?
How z it workig
Hi Donna8. I had pretty severe shortness of breath and pretty bad water retention. I was so happy to get off of it and almost stopped on my own.
Any One Familiar With Procrit Or Jakafi? Good, Bad Or So So?
Anybody Taking Ojaar- Momelotinib? Do You Have Side Effects?
Has Anyone With MF Been Offered The New Drug Approved This Month, Momelotinib Or Spoken To Their Provider About It?