Quick Links
About myMPNteam
Powered By
Pros And Cons Of Doing The IV Thing That Removes Platelets. How Does This Work? How Often? How Long Does It Take Each Time? Does It Hurt?
My Hema said I could do it in their office. I’ve heard it can cause iron deficiency, anemia, loss of nutrients.
But it’s gotta be less toxic than an Rx, right? Seems all options have pros and cons? Some better and worse than others.
Thought this could be a good place to start for if and when I’m told baby aspirin isn’t enough.
New to all this mess and just started baby aspirin Jan. 31 but don’t even want to be on that.
🤷🏻♀️
Forgot to include the 20 year longevity study. The Anagrelide < HU study was separate from the phleb + aspirin < HU < interferon study.
Why Don’t We Get The Best Treatment Versus The Old Routine…
I think they use Hydrea for cost. I’ve heard the newer treatments are very expensive. My mother had PV 24 years ago and it was controlled with Hydrea. I am taking it for ET.
Besremi And Effects On Thyroid
Early Side Effects Of Hydrea
I’ve just started hydrea after two years of venesections and monitoring of my PV. Bloods are now in the red zone and finally have been taking the proffered hydrea. A few days in, I am struggling with extreme tiredness and low level dizziness. Can anyone tell me if this is normal in the early weeks of taking hydrea 500mg daily?
Hydroxyurea messes with my stomach to but I'm still greatfull for it. Wish you the best!
PV Diagnosed Dec. 2023, Age 72, Treated With Phlebotomy And 81mg Aspirin. Doing Okay. Can This Work Long-term? Has It For Some Of You?
Although it was prescribed, I never took HU as I was concerned about skin cancers and side effects. Shortly thereafter, I was diagnosed with both melanoma and basal cell, so that settled it. I just… read more
Anyone With ET Using Besremi?
I have been on it since December 2023. Had only on phlebotomy since then… just two weeks ago. But I I’m PV not ET. Doing well.
USA Q: Does Medicare Coverage Impact Whether You Are Prescribed HU Or An Interferon?
Thanks Tina.
Does Anyone Take Jakafi For Polycythemia Vera?
I just started taking it a few months ago, I used to take Hydroxyrea
Besremi has been working for me.
Is Jakafi Better Than Hydroxyurea For PV?
I take hydroxyurea 500mg daily and it's controlling my PV very well. But I am extremely fatigued - to the point of making it hard to even work. I am considering trying to get Jakafi and I am wondering if I will still have the fatigue due to having to keep my blood counts low. My Hgb is 13, Hct 37, RBCs 3.5, Mcv 109. Any advice? Is it the hydroxyurea making me so tired? Or is this life with PV?
Anyone Being Treated For ET With Besremi? Is It Working?
Hello, I’m 26 and using BesRemi for PV. My plalettes came down from 1000 to 400. I’ve been experiencing some side effects but nothing terrible at the moment!
Your Privacy Choices