Have Mild MDS & ITP, & Some Fibrosis In Bone Marrow.Platelets Managed Weekly W/NPLATE Injection, Itching With Water Contact And Raynaud's
Is this common? Help with Itching. I am taking VONJO a pacrinitib for this which helps somewhat, but not overall. Any suggestions
Pat
That was great information from Tta, thank you. I am fairly new to ET, being diagnosed a couple years ago. I have described my bone pain as aching from the insides of my bones (legs and arms) To me I kind of feel like my bones are rubbery, meaning they feel very weak with no stability. Lol I describe it as feeling like Gumby from the Gumby and Pokey show I watched as a child 😂
I have recently started to have pain in my finger joints, I’m not sure if it’s from ET, the medication or arthritis so I plan to ask my doctor about it the next time I see her.
I’m definitely going to read some of the links from Tta’s response.
Hopefully my answer helped a bit with your question.
Gwen
Anyone Taking Pegylated Interferon For An MPN And If So How Bad And How Long Did The Side Effects Last?
Has Everyone Who's Been Diagnose With An MPN Had A Bone Marrow Biopsy Done?
Bone Marrow Biopsy