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I Have Persistent Nausea And Retching That Happens Regularly. Is Anyone Else Experiencing This Too? Or Is This Related To Another Condition?
I found out I have hypothyroidism, I had a hysterectomy in November. It is not as bad as last year, but continues to happen. Was hoping someone can provide some guideance.
Ana, have you ever been checked for Hpylori? I had those symptoms for a couple of years and when hospitalized 4 years ago I kept insisting they check for that - despite having had over 300 blood… read more
Anyone Else Experiencing Memory Issues? Not Age Related But Connected To This Cancer?
Are you PV or ?
My Platelet Count Suddenly Jumped From 450 To 650 In A 3 Month Time Period. Dr. Cannot Account For It, Just Wait & See. Anyone Have Ideas?
after I got over the craziness of knowing I have a chronic blood cancer ET with mutation of the jak27617F I now feel much better about it
Is It A Symptom Or Stress?
Hello all, let's starts by saying how grateful I am for this group. I enjoy knowing I can go here and ask questions with overwhelming and writing my own family. You all are my MPN family.🥰 So I am 47 and I am a teacher, and the teachers Union President and the head of the World language department and a mom of 2 and I'm getting older. So everyone understands that by itself is stressful. My question is, how do I know if what I'm experiencing is a new symptom or just life, I'm guessing I go with… read more
Dear Janice,
As long as you understand that that is just your opinion and your beliefs, and not what science says, that is fine.
People do function on their beliefs, but it is ethical not to give… read more
Ocular Migraines
I’m new to the site and just received positive JAK2 mutation results - discovered via a high platelet count at my regular annual physical. I’m in my mid-60s, in excellent health other than high platelet levels (800s), and all other blood levels and markers are normal and I had no symptoms. My hematologist suspects ET, but I will meet with him next week for confirmation & a full consultation and review of treatment options. The only other remarkable issue I’ve had over the past few years are… read more
Dear MJGee
I experienced an ocular migraine the day I suffered a mild heartache in November of 2017 which led to my diagnosis of ET Jak2+. Since, I experience about 6 a year. I also, started with… read more
Iwith You On This Bone Pain, How Do You Differentiate If It's From Past Injuries, Arthritis Or Whatever.
I've had many injuries throughout my life and have many aches and pains due to past injuries from playing sports, working or whatever. How the heck do I know if pain is from ET or what.
Thank you for the hugs. I really needed them.
Has Anyone Experienced Bone/joint Pain? I Am Still Waiting On My Bone Marrow Biopsy Results But Was Diagnosed With ET + JAK2
One of the problems good people have is "we don't want to get hooked on pain meds." But we need to realize that medication is available to treat the correct symptoms. If physical activity can help… read more
I Have Left Shoulder And Arm Pain. Sometimes The Pain Is Worse And Then Subsides A Bit. It’s Like An Ache Or Stiffness. Is This Bone Pain?
Thanks for these resources!
Bone Pain Vs. Regular Aches/pain
I have well-managed ET with minor symptoms. I have seen others talk about “bone pain” and I’m not sure exactly what that means. Is it the same as joint pain (knee/wrist/etc.)? Or is it something else - such as sharp pains in long bones like the arm (radius) or thigh (femur)? Can someone please describe it in more detail for me & explain how it was diagnosed, and what your doctor suggested for relief ? ~ Thanks!
Thank you, Tatiana. Blessings on you today.
Why Are Doctors So Reluctant To Use The Word Cancer In MPNs Or To Dismiss Quality Of Of Life Impact?
I noticed that both my hematologists avoid to use the word cancer when talking to me. When I got the diagnosis, the hematologist downplayed ET so much, despite the fact that I was in fever, pain and had so much brain fog I had to take a nap during the appointment. All these are ET symptoms, but apparently not for my doctor. So I was fine in his eyes. Being young was the reason
This was very detrimental as my partner thought and still thinks that ET is a bit like a headache, nothing scary, and… read more
lol... Just an old expression!
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