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What Is After Jakavi In Myelofibrosis???
I Have Gained 13 Lbs. Since Taking JAKAFI. I Am A Small Woman, And This Has Caused More Abdominal Pain. Has Anyone Else Gone Through This?
What Are People Paying For Jakafi
I am on Medicare and Medicare Drug Plan, using AARP, I was just thinking about going to Jakafi and the price I am being quoted is around 2900.00 per month for 10Mg twice a day. Just curious what the real cost is. I can go to my Cancer Center and ask them to try for a better price, still won't know what the price should be.
I took Jakifi from April '22 until maybe November. I paid more like $4600 a month with insurance. Now I'm on Inrebic which is more like $6200 a month and I'm having to go look for assistance in order… read more
I Am Puzzled And Worried That My Haemoglobin And Platelets Keep Dropping Whilst I Am On Jakafi Medication.
I have been diagnosed in the last 5 months with Primary Myelofibrosis. Prior to that i have had thrombocytopenia.
One of the problems with Jakavi is it makes you anaemic To the stage you could become transfusion dependant Try and finds clinical trial in your area
Anyone Taking Pegylated Interferon For An MPN And If So How Bad And How Long Did The Side Effects Last?
I have PV and am JAK2 positive. I was diagnosed two years ago and have been taking 1500mg Hydrea/per day for almost a year. It has been keeping by blood work and symptoms under control. I am under 60 and have concerns about staying on Hydrea long term. I just had a telemedicine appointment with a doctor at Johns Hopkins who also expressed concern about the long term use of this medication, particularly for me since I am also BRAC2 positive. We discussed two other options such as Jakafi or… read more
I couldn't tolerate HU, and just switched to Pegasys after going to a Specialist out of state, and him finding me a better Oncologist locally. I had no big side effects from my first injection. A… read more
So If One Was On A Med/meds For ET, Or Similar Issues, Besides Lowering Platelets Will It Also Fix Or Lessen Other Related Issues?
Issues such as chronic migraines, headaches, fatigue, itchy skin, worsened vision, occasional burning feeling in feet, intermittently getting hot, brain fog, body inflammation, etc.
Would peg interferon help these? Jakifi? What others?
Trying to learn 🤷🏻♀️.
Steve, thanks for your input. Always valuable.
Is Anyone Currently On The Medication Combo Of Interferon (Pegasys) And Ruxolitinib (Jakafi)?
I know many people are taking this combo. Is anyone on this forum? If so, how are you doing on it? What dose of IFN & RUX are you taking? How long have you been doing it? What is your diagnosis? I'm ET JAK2+ & will be discussing this combo with my MPN specialist at my next appointment but wanted to get input from those that are currently on it. TYIA!
45mcg is .25ml. use small diabetic needles. Right now I'm using .07ml which is 12.6 mcg. It's a tiny amount. So you might try .12ml which is 21.6 or .13ml which is 23.4 mcg.
I'm 34 Having Myelofibrosis Grade 2. I'm On Jakavi 20 Mg For 6 Months. Initially It Was Good But Now My Platelets Are Rising Again At 700000
and my spleen is also enlarged. But my hematologist is taking the thing casually. Can anyone here suggest me something?? I'm thinking about changing my doctor.
Dear Alcapella
I have been diagnosed with PMF in 2023 with jak2 mutation
Doctor started jakavi 25 mg in may 2024.
It is working but slowly. Spleen is 15 cm and hb at lower side.
Doctor is saying… read more
Does Anyone Take Jakafi For Polycythemia Vera?
I just started taking it a few months ago, I used to take Hydroxyrea
Besremi has been working for me.
People Taking Jakafi. Side Effects? How Long To Take Effect? Does It Keep Hematocrit Numbers Down To Prevent Having Phlebotomies?
It did for me but then my counts got to law and I became anemic. I was on the lowest dose.
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